Wet Earth and Dreams Wet Earth and Dreams A NARRATIVE OF GRIEF AND RECOVERY Jane La^arre Duke University Press Durham 1998 © IQS)8 Duke University Press All rights reserved Printed in the United States of America on acid-free paper 00 Frontispiece photo, text, andjacket design by C. H. Westmoreland Typeset in Monotype Fournier by Tseng Information Systems, Inc. Library of Congress Cataloging-in- Publication Data appear on the last printed page of this book. Some of the names in this work have been changed. FOR L. Digitized by the Internet Archive in 2020 with funding from Duke University Libraries https://archive.org/details/wetearthdreams01laza Acknowledgments I owe special thanks to Sara Ruddick, Ruth Charney, and Douglas White, who read each chapter as it was being written and gave me courage and faith. For their careful editorial responses, I thank Carol Ascher, Jan Clausen, and Jaime Manrique. For her help in many ways, I thank Claire Potter. My sons, Adam Lazarre-White and Khary Lazarre- White, are two of my most trusted readers. I can never express the importance to me of their devotion and understanding of my work. There are two readers whose support was central to my decision to publish this memoir. For their close readings and confidence in this work, I thank Nancy Barnes and Sarah Lazarre-Bloom. Once again, I am grateful to the wonderful people at Duke University Press, especially my editor, Valerie Mill- holland, and Emily Young and Sarah E. Ball Damberg, for their insights, responses, and conversations. As always, I thank my friend and agent, Wendy Weil, for her support. My family and friends guided and strengthened me through the experience that became this memoir. I thank them all for their notes, gifts, calls, attentions — for their steady love. — Hands dripping with wet earth head full ofshocking dreams O what have you buried all these years what have you dug up l — Adrienne Rich, “Calle Vision, 9,” Dark Fields of the Republic, Poems 1991-1995 When I awoke in the recovery room after two hours of anesthesia, during which time a cancerous tumor two centimeters large had been removed from my breast and eleven lymph nodes from under my arm, the threat which I felt I had to resist at any cost was unconsciousness. The moment I woke up, despite tubes and nausea and a horrible sense of amnesia — hours and a dramatic experi¬ ence simply gone, erased, as this computer can be made to erase passages, pages, entire files — the very moment I awoke and heard my doctor’s voice, then my husband Douglas’s, eventually my son Khary’s, I wanted to sit up, be told everything, return to the fullest possible awake- ness. But I was being pulled back into sleep, and even though the nurse was my ally, wanting to bring me “out,” telling me to breathe and stay awake, something men¬ acing, I felt, was pulling me “in” or downward, a down¬ ward place where I fully believed death waited for me, or where I would lose my mind. I had no idea at the time why Khary’s hand, more than anyone’s, was the hand I needed, but I clung to it as if I were the child, he the par¬ ent, as if his exquisite devotion could literally save my life. I forced my eyes to remain open with all the will I possessed, and when my friend, Leona, who is a nurse, came into the room and whispered, “Try to stay awake, get up and walk, you have to pee before they will let us go, and we have to get the fuck out of here,” I felt I was in good hands. My surgery was “outpatient,” meaning I was intended to go home the same day, and although I was aware that this new system existed largely to increase the profits of insurance companies, and due to many delays all day it was nearly midnight, I was determined to get home as fast as I could. And so, after an hour of vomiting, talking, peeing, and walking, Leona pushing me from behind so the nurse on duty wouldn’t notice, I was finally in a taxi heading up¬ town to my apartment. I woke up several times in the middle of that first night with a sense of joy, the ecstatic feeling of power that comes with escape. I was alive. I was awake. I had spo¬ ken to Adam, my son who lives in Los Angeles; I had held Khary’s hand. I could get up and walk to the bath¬ room alone. I was heavily bandaged, a drainage tube was attached to my side, and I was feeling strange pains up and down my right arm, but I was in my own room. The window was open and the breeze cool. No strangers were in sight. Lying next to Douglas, intent upon re¬ maining awake as long as possible, I could go over and over the past twelve hours in my mind, trying to recap¬ ture as much of my lost reality as I could. I relived my arrival at the hospital the previous day where, dressed only in a thin hospital gown, crowded into a room with strangers similarly clad, we all waited for surgery together, yet each alone, our loved ones ban¬ ished for some reason to a far-off waiting room. After three hours, I began to grow anxious and begged the nurse to check on when I could expect my turn to finally come. She flipped on a computer and an operating room appeared on the screen. On the bed in the room, a woman lay on her side in a state of what appeared to be semicon¬ sciousness: her legs crossed vulnerably, her gown barely covering her back and buttocks, which were turned to the camera. Quickly, the nurse switched off the screen and said, “You see, we’re waiting for a place to move her so you can go in, but the recovery room is still full.” Another hour would pass before my doctor came to fetch me and we walked, like two girlfriends out for a date, both of us in hospital greens and large paper slip- 3 pers, down the hall, into the elevator, down another hall, and into the brightly lit operating room where I was in¬ structed to climb onto the table and an anesthesiologist inserted a tube into my arm. The last thing I heard was my doctor’s voice saying, “So, David tells me you have written lots of books. What are their titles?” David has been my doctor for twenty-five years and is also a friend who has taken an authentic interest in my work. But even in the increasing haze, I realized this was just a form of being asked to count backward from ten to one, and so, instead of answering her, I said, ten, nine, eight, and then I lost time. I was only vaguely aware of a disturbing familiarity at the very center of my happiness as I lay in my bed, staring at the walls, the curtains, the shadows of my quilt on the ceiling as I moved my knees. I was afraid of sleep, which had for years been a balm for me. If it weren’t that I felt so relieved and even joyous, I’d have been reminded of my childhood when chronic insomnia made every night a nightmare long before any dreams began. The Self That Self Restrains In the spring of 1995, the condition I seem to have been waiting for all my life finally struck me. I was trying to keep afloat after three difficult years full of crises and dis¬ appointments. I knew I had to move to a new stage or phase of things, to unencumber myself of old, tiresomely repeated themes, and especially to liberate myself from the anxieties and fears of disaster that stalked my days, as they had off and on for more than a decade. I thought I could face whatever network of defenses and distortions had held these fears in place so long, but I was losing the battle for a sense of control and becoming increasingly depressed. A surprising characteristic of the depression was my ability to go on functioning in the world at a level of ordinary competence so that only my very best friends, or those who were for some reason interested in being especially observant of me, noticed. I taught my classes, mentored my students, remained extremely in¬ volved with the lives of my grown sons, and was even engrossed in the writing of a book about the dramatic changes in my perspective on myself and my society as a result of living for more than twenty-five years in an African American family, the white Jewish mother of Black sons. Yet there is no question that I was seriously depressed, if that overused word continues to suggest a sense of unalleviated, bleak hopelessness, chronic physi¬ cal fatigue, sadness with seemingly no end, loss of sexual desire, and, at times, the wish to die. I felt like two women: the one everyone knew— teacher, writer, mother, provider, attentive wife and friend; and that other one, as I began to call her. The girl/woman who above all was constantly afraid, at least 5 some part of every day subject to visions of disaster de¬ stroying me or those I loved, especially Adam and Khary, my sons. I’d be away on vacation with a close friend, and as I walked home from a lovely day at the beach, a “vision” would come to me that local police were waiting to tell me my family had met with a terrible accident and were all dead. I could see the faces of the police, careful and worried; I could hear their solicitous voices; I could pic¬ ture myself packing, rushing home to identify the bodies. My heart would begin racing as we neared the little cot¬ tage where we lived for a week or two in idyllic peace and remote beauty. Whatever conversation I was having with my friend would fade into the background as I struggled to argue against myself, trying to dismantle the ineluct¬ able reality of my sudden fear. And I could not relax into normality again until I had made a call home, ascertained that all was as I’d left it, not suddenly, irretrievably lost. Or, lying in bed in the middle of the night waiting for one of my sons to come home (if they were visiting, or home for vacations during their college years, or living at home for a time while in a transition between college and the next stage of life), I’d be attacked (it felt like an attack from the outside which instantly permeated the deepest recesses of my inner self) by the conviction that they were hurt, either by gun-wielding cops or socio- pathic young muggers, and I’d have to get up and pace the apartment, drink water, sweating and crying, some¬ times for hours, until I heard the key in the door. Over the years I tried to convince Douglas of how much I needed reassurance rather than anger during these bouts of hysteria. But anger—because I could spark his own anxieties and because nothing disturbs him so much as people being out of control — was always close to the 6 surface of his reactions. And it was not until that spring of 1995, when I got breast cancer, and its six-month after- math of painful and frightening treatments, that he came to believe in my inability to control my panic at times, despite honest and strenuous attempts to do so. Whenever I was subject to these bouts of fear, and they came more or less often depending on many fac¬ tors, it felt as if all order, design, and predictability were gone from the world and everything in it. Chaos reigned, an evil chaos, like a curse or supernatural punishment, incomprehensible to ordinary consciousness yet making some terrible sense. An explosion might occur suddenly, blowing my or some loved one’s body to fragments of unidentifiable tissue and bone. A car filled with drive-by shooters might murder one of us for no reason, any time, any place. A subway could be derailed and all its passen¬ gers killed. Any and all natural and man-made disasters seemed not only possible, which the nightly assault of local and national news broadcasts assured me they were, but imminent. Even the character of my children could fall into a chaotic world where nothing was known or re¬ liable. They are both stable, strong young men, neither of them at all self-destructive. Yet, I could suddenly have a fear of one of them committing suicide, tortured by some torment or despair utterly hidden from me. When I look back now, feeling stronger each day and having been given a very good prognosis, though always frightened of the recurrence of cancer, I under¬ stand that my life is changed forever by the diagnosis, the lumpectomy and removal of lymph nodes that per¬ manently changed the feelings and capacities of my right arm, by six weeks of daily radiation, and five months of chemotherapy. I recall my first visit to the surgeon who would determine the recommendation for treatment. I 7 was frightened, of course, but steeled myself to a brav¬ ery I knew I couldn’t do without. Hysteria, of the sort I was used to during my nightmare visions, seemed almost as dangerous as the cancer itself. I asked in a fairly con¬ trolled tone of voice, I think, what the long-term effect of surgery on my breast would be. How deep would the cut be? Would it look like half a breast, or just a breast with a hole in it? The young woman surgeon, who was immensely capable and immensely busy, felt around for a few minutes, trying to distinguish the original lump from all the surrounding swellings that were the result of the various biopsies, then stepping away from me she said: “The breast [the medical people always said “the breast” and “your cancer,” a choice of vocabulary that tended to reinforce a sense of guilt for having cancer in the first place] will look somewhat though not dramatically different. But you,” and she pointed at me somewhere between my face and my heart, “will probably never be the same again.” And she was completely right about that. The immedi¬ ate result was that I was no longer depressed, absolutely certain that I wanted to live as long as possible. The fears not only remained but became even more intense and with their increasing intensity, my increasing desire to escape them by facing them once and for all. Having a life-threatening illness not only changes perspective, as everyone says, but pattern. The relations between things seem to shift. Previously veiled or disguised connections are suddenly exposed, and as in fiction, it is the connec¬ tion between seemingly disparate experiences that pene¬ trates defenses and promises lucidity. Perhaps, that is why so many writers who undergo such an experience must write about it before they can resume writing any¬ thing else. Just as, despite great inner resistance, I do now. It seems absolutely necessary to name the change, and to do so, one has to become clear as to what led up to it, what came before. Perhaps I had feared breast cancer even more than most women because my mother died of metastasized breast cancer when she was thirty-eight and I seven, and this experience, of witnessing her illness, decline, and death over some years, as well as the particular aftermath of the death constructed by a fairly insane family, had literally determined the structure of much of my life. Although I often felt embarrassed by the recognition that this period of childhood still influenced me forty-five years later, I know for certain now that every important experience I have ever had, everyone I’ve loved or hated, every cen¬ tral choice I’ve made — my marriage, my mothering, my friendships, my worst faults, my steadiest virtues, and certainly my writing—has been affected by this incident at the heart of the narrative of my life. Years ago, I came to believe I had resolved old feel¬ ings about my mother through a combination of psycho¬ therapy and writing, that I had transcended the legacy of loss, grief, and the threat of madness I knew as a child. I had written books about mothers, including myself, and books about daughters, all of them, according to Gloria, a therapist I worked with for about twelve years, written in part to bring my mother back to life. All of them, in that sense, were failures to me; yet all of them also were stepping stones away from her influence, each book like a stone across a rushing stream that periodically rises to overflow the banks, but each stone solid in its hard, flat existence. After about six years of therapy and two more books, Gloria told me she thought I had finally buried my mother, and she had reason to think so. Strengthened 9 by Gloria’s kindness, frankness, and the carefully honed intuition of one who has made listening into an art, I had come to understand that I suffered from a sense of guilt for my mother’s death, a guilt constructed of false but apparently typical childish beliefs about the omnipo¬ tence of wishes and the dark attraction of desolation and longing, if those emotions are all that continues to con¬ nect one to what has been lost. Death was a place, I had decided as a child, where my mother still lived, and I had grown into my forties when I understood that my love/hate relation to death, and the need to relive and relive my early powerful emotional ambivalence toward my mother’s memory as well as her absence, had influ¬ enced my entire life story, rubbing it, slowly scraping away at it, polishing it at times to a magnetic and scin¬ tillating shine — just like the rushing stream upon those flat, safe stones. Achieving this understanding, I lived through periods of exhilarating well-being, the strongest sense of confidence and ordinary happiness I have ever known. I had finally buried my mother, in a way. What I did not fully appreciate then, but know for certain now, is the inevitability, with certain bedrock mythologies in a life, of periodic resurrection, or, to sustain the previous metaphor, of storm and flood. Stories of our lives often happen by accident, and these stories provide the conditions, if one so chooses, to re¬ examine the past in a new and deeper way. Having breast cancer was such an experience for me. It followed a pe¬ riod during which all my central stories seemed to be about loss. The stories of loss began when Gloria her¬ self died from metastasized breast cancer; continued with the slow dying and eventual death of Douglas’s brother Simeon from aids; with immense work disappointments for both Douglas and me; and with an experience of pro- 10 longed anxiety during a trip Khary took to Jamaica that included a short but complete breakdown in myself. I am sitting in Gloria’s office, in my old chair, only this time I am the only one in the room as Gloria has been dead for some weeks. I have been here for over an hour, thinking and writing, and finally I close my notebook, get up, and for the last time walk out the double doors into the tiny garden that leads up the stairs to the street. I feel no sense of closure or resolution. Quite the opposite. I realize it will be some time before I comprehend what I have lost or even clarify what I may be able to preserve. After the funeral, I had called her husband, also a therapist whose office was at the other end of the base¬ ment level of the brownstone they shared, and made an appointment to see him to talk about our mutual loss and get his advice about seeing another therapist, pos¬ sibly someone Gloria herself might have recommended if she’d had the time. He and I decided I would put off the decision about entering therapy with someone else until I had thought about —in his words — what I had accomplished with Gloria. After all, I had “terminated” the first, long cycle of treatment some time ago, and now came back only for periodic epilogues, lasting months or weeks, motivated either by crises I needed help with, or simply by the desire to see her and engage in that special sort of conversation about the self that is possible with a long-known and beloved therapist. Her husband, who was obviously deeply bereaved, made a generous and surprising offer that day. I could, he said, come to sit in her room whenever I wished over the next few weeks. I could just call ahead and let him know I was coming, and no one would disturb me. I went twice. The first time I sat in her chair, hoping to experience in some immutable material form the idea, which she had voiced on the occasion of various sepa¬ rations, that she would always be with me. I found her glasses on the windowsill near her chair where she always kept them, half-glasses to put on so she could read, and for a few moments, I put them on my own face. Then, her presence became very strong, as if she still inhab¬ ited the room — with her wide skirts, paisley button-up blouses, her flat shoes — as if even now she was shift¬ ing heavily in that chair, beneath me. She would look off into the distance, trying to find words that did not always seem to come easily to her, although insight did, as if she were able, like a painter or a dancer, to know things without language. The first time I began by just looking around the familiar place where I had undergone a transformation in my character, a sea change, Gloria called it, that began with a breakdown in my thirties when I reached my mother’s death age. Twelve years later, sitting in Gloria’s chair trying to comprehend the loss of her, a strange feeling overtook me. First I felt a heavy warmth, a heaviness that suggested an anchor¬ ing, or a sucking down, a hypnotic and familiar fatigue that threatens both consciousness and capacity, making me want to stop, give up, relinquish, retreat, a feeling I had described many times to Gloria of wanting to die. Then, as often happened, anxiety replaced fatigue, and I thought she was in the room and wanted me to get out of her chair. Bereavement. The wish to die to be reunited with the one who has been lost. The dangerous and com¬ pelling retreat from energy. And then the fear that such a wish might be granted. “She,” or what I kept of her, pro¬ tected me. I got up and resumed my old seat, opening a 12 small black notebook in which I began to record all the feelings I’d had up to that moment. A feeling of calm re¬ turned, a sense of belonging. The second time I visited her room, I decided to write a careful description of all its details so that in years to come they would not be lost to me. I sat down immedi¬ ately in “my” chair, in reality the one I shared with many others, and as I had done hundreds of times before, I looked around at the peaceful yet provocative space she had created. Each week there would be fresh flowers in a vase on her desk. Now there were dried flowers in the vase, purple roses. Perhaps she had put them there before she left this room for good, and here they remained, drying into another sort of beauty. On the polished floor are two warm rugs, one brown tweed, the other green, brown, and yellow patterns of branches and flowers, a pattern I studied for many hours over the years when I regularly visited this room. The yel¬ low couch I never lay down on because I always wanted to face her was behind me as usual, and I got up and lay down on it then, just to feel what might have been. Rising, I felt, like a blow to the chest, the emptiness of her black leather chair, the chair now filled with her ab¬ sence. I recall the same odd, powerful tangibility of ab¬ sence in my father’s chair after his death. For months it did not seem ordinary, but always empty, as if emptiness and absence were things you could touch, be touched by, embrace, and, if you had nothing else, preserve. On her chairside table are her old, scratchy notes in two spiral notebooks. I remember her picking them up and beginning to write only when I was reporting dreams, as if she could recall everything else adequately but needed notes to remember the intricate images of the uncon- scious. If my dream was short and clear, as some dreams are a perfect distillation of a broad pattern of feeling, she would write only the beginning, then take her glasses off her nose and look at me. This would happen each time I had the recurring dream about the heart in the cave. I was walking down a windswept, desolate but peaceful ocean beach and I would come to a large cave. Inside, I was burying something, packing it down with sand. When I was done I said aloud, I have buried my heart and I will never take it out again. So, what exactly have you buried there? she would ask each time, making a note on her page, then staring into my eyes. On the table on the other side of her chair are the objects I have studied so often, whenever I needed to look away from her. A small sculpture I believe I have seen somewhere else, known in some other place, of a woman’s face with a beaded headdress in bronze. A tiny man in coat and hat, head down, running, escaping from something. An ancient Hindu goddess raising her many hands. Over the fireplace, with its magnificent Mexican tiles, an old rabbi with a long white beard and a cap painted black looks eternally into his open book. On the wall, a woman made of white stone swings freely in a hammock — or she is the hammock — her arms raised be¬ hind her, her body a V shape as she swings. And framed in gold, there is a detail of a Reubens, the very same por¬ trait I had on my wall as a child, which still hangs in my study today, reminding me of the inexplicable con¬ nection I felt to this woman whose heart was remarkably open to the stories of mine. Occasionally, we meet people who seem like lost kin or spiritual siblings. Some might say we’d known each other in a past life and were des¬ tined to know each other in successive lives as well. A very comforting story that both recognizes the mysteri- 14 ousness at the heart of certain unlikely loves and suggests that terrible loss is not irretrievable, that there are future meetings with lost beloveds the nature of which we can¬ not imagine. “What is death like?” I asked another close friend who had recently died and then came to me in a dream. She responded, “near, very near.” Gloria’s books and papers are still in place, and remem¬ bering the pain of dismantling my father’s apartment, my old home, after his death when I was twenty-eight years old, I wonder when her husband and children will take this room apart, with its crowds of shadow selves in pain, in moments of reparation and hours of healing under Gloria’s careful, respectful, and pragmatic eye. She lied to me twice, but her trustworthiness had taken firm root by the time I knew of the lies, and so I am left with regret and dismay rather than anger. The first was about her illness. I had asked her if she were ill several weeks before she died. She looked weak and gray and something clearly was wrong. She said she was fine, was having some minor blood problem but would be okay. The second lie was about the illness of her child. After she died, I found out from her husband that one of their children had diabetes, as does my older son, and more¬ over, they had contracted the disease about the same time. I suppose in both instances she felt too vulnerable herself to risk my reactions threatening what must have been a precarious balance at the time. If she were here I would say, You should have told me. As she is not, my criticisms are greatly outweighed by my love. At her funeral it was said that she loved Bach, a serene and orderly music. We had talked a great deal of our mutual need for order, and although I do not know her history in relation to this appreciation, I know that mine i5 came into existence in her room because of what she taught me. When I met her, I was besieged by passions I did not understand and by a belief held in place since childhood that only passion could rule my life authen¬ tically. Over the course of a decade, she helped me to understand that I could control my life, my surround¬ ings, and my emotions. I came to see that I did not have to be a slave to impulse, immersed in chaos in order to distinguish myself from the myth of an orderly, disci¬ plined mother, with her carefully created, elegant out¬ fits and her formal dining room, which I was allowed to enter only when she and the other grown-ups were ready for dessert. It took many years to accomplish it, but under Gloria’s guidance I became not only capable of but fascinated with order, structure, and design in seemingly every aspect of my life. I was reading many biographies of women writers during that period, and in one on the life of George Eliot I found the phrase, used by Eliot in a letter about her own search for control, “the self that self restrains.”* This idea became ideal for me, an aspect of character I was determined either to recover or to create. Compared to my passion in this search, naming the old heart lying buried in that cave seemed an uninteresting task, or at least one that could be put off for an indefi¬ nite time. After I had breast cancer, I would be forced to return to the cold, gray beach where I would have to uncover that beating thing, whatever it was, from its place under the damp ground. But Gloria had returned or given to me the equally important possession of disci¬ pline, and this treasure was rich enough to sustain me with emotional and intellectual work for many years. The last time I saw her she was lying in a hospital bed * Ruby Virginia Redinger, George Eliot: The Emergent Self (New York: Knopf, 1975). in her living room, preparing for death. I lay down next to her and we embraced. I said I loved her and she said, this time directly, with no analytic questions about my need to know her feelings, that she loved me too. She said she was worried about me, losing another “mother” to breast cancer, and I promised her I would be all right. I meant that I would not become a slave to grief, as I had as a child. Yet, because of the multiple losses I was to experience in the next few years, I would break my promise, and when I had breast cancer myself, I would long for her voice, her wise face smiling ruefully at the accidents of life. I would miss her with the physical im¬ mediacy one feels in the early months following a death. I would see her walking down 94th Street. She said she did not want to die, but was not afraid to die. I try to imagine myself so centered, focused, and brave and find it impossible. I always fear the end of things. Leaving anything behind, even painful experi¬ ence, is difficult. Several friends have told me I should write something else now, not immerse myself in these griefs again. But this is the only way I know to find the next flat stone that might be wide enough to hold me for awhile. Gloria believed without question, as so many do, as I once confidently did, in the importance of personal stories. “Your way of writing,” she used to call my work. When we talked of writing, my resistance and loss of desire to write, the seeming futility of trying to affect an oblivious world, she seemed more than at any other time, confused. And we would go back to our digging—to the older sorrows, my father’s judgments, my mother’s leav¬ ings. I would see my writing as a way to gain their atten¬ tion, to do magic and negate even death. I would swing between grief and hope, like the white stone woman end¬ lessly swinging on Gloria’s wall. First, I would dream of bearing shabby gifts no one wanted, of dinners poorly prepared, raw chicken, insufficient amounts. Then I’d write something that expressed what I felt or understood about experience, and I would feel worthy again, a giver to the world. When I walked into her room that last time, having been met by a nurse in the waiting room who solemnly ushered me upstairs to the part of the house where the family lived, where of course I had never been, I resisted clarity with a terrified vengeance. “Oh, how beautiful,” I virtually sung as I sat down on a chair looking around the spacious room, as if she were not lying in a hospital bed, drawn and pale, obviously nearly unable to move. “I am dying, Jane,” she said to me, and that was when I began to cry, rose from my seat across from her, and lay down next to her on her bed. When I left she told me we would see each other again, have time to say good-bye. But when I reached the stairs and looked back at her, a familiar and awful light filled the room, a light I have seen at other deathbeds and dreamed of many times. It is not a light that clarifies in the ordinary sense. Rather, it illuminates, it glows with a kind of shimmering fog. Several days later, her husband called to say she had died. “I felt I would never see her again,” I said. “And now that has come to pass,” he responded. I did see her once more, in her coffin, but that is when a face seems closed, a mask, the spirit gone. What did you accomplish with Gloria in your work over all those years? I have heard her husband’s question again and again in the past six months since I have begun writ- i8 ing this story as part of an effort to recover more fully from a disease that kills by overflowing boundaries and devouring once delineated body parts into itself. She taught me I could trust that I knew what was hap¬ pening to me and around me, that I too had what I so loved in her, the gift of clarity. She taught me that con¬ fusion and chaos themselves could be a defense against clarity because of fear of pain or rage. Gloria and I were aligned in our efforts to save, love, but also control, a desperate and hungry part of myself. We cradled her, but we took her in hand. Twelve years later the part of me that gained strength and reality in her office feels like myself, not merely some theatrical mask or plastic prosthesis intended to support and protect the damaged stump, scarred and ugly, beneath. Yet I see that in a way I have been talking of masks all along, of famil¬ iar, trusted but still constructed limbs. Burials are never endings. I should have learned that from the many deaths I have known. I have become a woman whose world is not always beyond her control. But now I must retrieve — as Gloria knew but died before she could help me with the hauling — some of what I buried during those years. There is a painting on the wall of my new therapist’s office. A sequence of arches seems to lead to various tun¬ nels that become darker and darker as they move back from the surface. Those are the corridors I have become afraid of, the places of extremity I so wanted to leave be¬ hind. For months the sounds were loud but indecipher¬ able, the darkness not opaque enough to block out threat¬ ening shadows. They moved across my vision all day as I rearranged my eating habits toward a diet of fruits and vegetables, rearranged my days to include walking sev¬ eral miles at a brisk pace. And all the while, like some 19 dedicated farmer gathering crops before the rains, I gar¬ nered my strength for the next treatment. Now, the treatments over, I am still in those corridors. The darkness is lifting and it is not so scary all the time. I picture myself walking slowly down the shaded, cool cloisters until I am in a kind of courtyard. The ground is windswept and dusty. The trees are bare, and I am alone. The emotions are so extreme they might engulf me and everyone I know. And so I must sit and stare for some time, allowing the waves of feeling to pass through me. But there is no going back, nor would I want to. Here is the place I have been trying to find since the long de¬ pression began. There is a passage in the novel by Jane Hamilton, A Map of the World, which I transcribed into my journal: I used to think that bravery involved action. It took courage, I figured, to move forward, to pursue a dream, to get ahead in the world. Just to get where you were supposed to. I thought having desire took courage. Now I realize that none of that requires bravery. The only thing you really need bravery for is standing still. For standing by. And this one, from “Telling Stories under Siege,” by Amos Oz: His stories might have been every bit as terrifying as the be¬ sieging reality out there. In fact, his stories might even have had more terror in them than the wood or the bush in the dark, his monsters more monstrous, his spirits more evil, his ices more frozen, his fires more blazing. Yet in the stories, the horror was caught in words and the demons were contained by form. If my fear is that feelings can grow like cancer — chaotic, devouring, and deadly — and the safety of boundary is all that can keep me alive, then it must be a good thing that I have begun this narrative: a search in language for some intuited subtext beneath the ordinary disorder of a life. There is a definite chaos in my journals as the pages mount up. In my sessions with Aaron, my new therapist, I try to see patterns by listening for the crucial interruptions that may suggest a meaning to experience beyond the par¬ tial vision of my consciousness. I am brave enough to walk the corridors because of the rules of the trade. I am protected by the walls beyond which secrets must not be spoken, and by a relationship whose formal definition is as strict as its capacity to permit intimate revelation hopes to be limitless. More than these, I am brave in reaction to his kindness, capacity for attention, and re¬ spect. In this combination lies the humility I believe to be essential upon entering the terrain of another person’s interior life, however confident the theory that describes and interprets in a general way. And here, in these pages, I shape and reshape the struc¬ ture, the language. On the printed draft I design new connections and more precise descriptions with a dark black pen. Frequently, my newest, best insights are made in the margins, between the lines, continuing onto the back of the page. Then, on this computer, I work them into the text as if they had always been there. Something shifts inside me. I am saved by form. A Sense of Threat I am trying to understand one experience by what it shares with another. Patterns come to me, clusters of memories that seem to belong together, and I cannot, simply for the sake of ease or sequence, keep them apart. Old memories of the months preceding and the early years after my mother’s death when I was seven years old. A panic attack I experienced when Khary was attending a semester abroad, months before the cancer cells won their battle with my immune system and hardened into a tumor. And chemotherapy, which so frightened me I could write neither the word nor the name of the doctor in my journal but had to resort to initials, or watch my barely manageable fears escalate out of control. I will not perceive the connections among these memo¬ ries until all the cancer treatments are done. But I am dreaming with vague knowledge of being ashamed, and the shame is always for needing something I cannot have, or something that is not what I thought it to be. Some¬ how, I am humiliated, not merely disappointed; exposed, not merely wrong. A little beggar girl I saw long ago in a poverty-stricken street in Naples is in my kitchen. She looks at me with the pathetic eyes of a hungry cat and scratches on my refrigerator door with dirty, bitten nails. A river fills with blood, and long-missing bodies float to the surface while I sit in a boat aloof, even dissociated, wondering at the strangeness of what is happening right before my eyes. A distanced critic, I watch the dramas and keep track of all of the themes. Now, I turn back the pages of my journal to the day I found the lump, a surprisingly undifferentiated hardness I wasn’t even sure was a lump at first. I read my brief 22 entry the day I went for a needle biopsy and received the diagnosis. “You are the fifth person I have diagnosed with breast cancer this morning,” the radiologist said to me, and it was only noon. “It’s an epidemic.” But eight months before that, when I was experiencing increasingly intense panic attacks, I had written: I feel as if an actual illness inhabits me. Something at once for¬ eign and part of me devouring myself. I appreciate the danger of ascribing facile metaphor to illness, especially to cancer. I can become angry at the many books and acquaintances who advise one to move to northern Maine, where a hypnotic serenity presum¬ ably neutralizes the effect of sorrow and loss, to subsist on brown rice and seaweed, or “eliminate stress” from one’s life (an injunction that only increases stress in me, as I become stressed by the thought of how much stress there is in my life). I am suspicious of alternative heal¬ ing methods that overemphasize the “spiritual” core of physical illness and even counsel an avoidance of West¬ ern medical knowledge. My life has been saved by West¬ ern medicine, an early, relatively small cancerous tumor removed from my breast, followed by harsh chemical treatments that have hopefully destroyed any cancer cells that might have been left behind. But there is a sense one gains irrevocably after a life- threatening illness, that the mind, or spirit, and body are indeed one, or at least in intimate communion. I believe in the reality of the spirit and that it can be hurt as well as healed. For me, that healing always involves various forms of storytelling—the kind you recount to a thera¬ pist in that space out of ordinary space and time out of ordinary time called a “session”; the kind you write and rewrite in various formulations, experimenting with various designs; the kind you dream. It is in the percep- 23 tion of design that I experience healing, and if that word has been rolled around too often by shallow minds seek¬ ing instant and painless transformation so that it has lost its original power to suggest the relief of remedy, the joy of cure, I find that I still remain attached to its old- fashioned, simple promise that what is broken can, at least sometimes, be repaired. Between chemotherapy treatments are three weeks dur¬ ing which I try to make myself as strong as possible in body and mind, not only to prepare myself for what is a terrifying encounter each time but to build up my im¬ mune system in the face of attack. Close friends offer love and gifts, and one of the most treasured is the gift of several weeks’ stay in Bellport, Long Island, at the home of my friends, Sally and Bill, who are traveling in China. Reading or sleeping in these large, quiet rooms where all day and into twilight the sun alters the pale off-white colors of the walls, reflecting rosy pink, pale green, a slightly bluish lavender; swimming in the backyard pool, which is surrounded by hedges, maple, pine, and at one end, an old grape arbor; walking the hilly roads to the bay, or biking to the tiny, quiet town, I am at the same time veiled and wide opened, thinking I am perfectly composed, like an elegantly constructed story, then sud¬ denly overwrought, bursting into unfocused tears. I am extremely frightened of cars that, in New York City and here in these quiet streets, seem always about to crash into me, and I leap out of their way as they pass, causing drivers to look at me as if I am slightly mad. My need for love and reassurance is gigantic. I try to keep it on a short leash, afraid I will lose any hope of forbearance. Fear of death races through me like a brush fire, indistinguish¬ able from the hot flashes that have greatly intensified 24 since I stopped taking estrogen the day of the diagno¬ sis, so that one sets off the other by association and it all comes back, weeks of being trapped in my body, its pain, its disease, the certainty of its inevitable disintegration. The only escape is into the details of management. Chemotherapy changes the body in many small and obvious, as well as large and mysterious, ways, and for the first time in my life I have a skin rash due to the chemi¬ cals in sunscreen lotion or to the sun itself. I use #15 to protect myself but spend large amounts of time wonder¬ ing if I should escalate to #45 or return to #8. I plan my meals of spinach, broccoli, brown rice, count off a small pile of vitamins each morning. Despite my undiminished craving for hamburgers, vodka on ice, cigarettes, bread and cheese, I research and create a dozen vegetable dishes and I eat them. I eat them every day and I follow them with glasses of clear, purified water. Despite my desire to sit and stare, read or think or write, I walk, and I walk fast. And despite a lifelong ambivalent love affair with death, I have never been so certain that I want to live as long as I possibly can. During the months of treatment, the clearest reason for living is to see Adam and Khary develop their lives, their children bom, their ambitions fulfilled, not to have to leave them. Only much later will the desire to live include the wish to see my own life de¬ velop. Now, hope is only sought after, not yet reclaimed. I buy new sneakers for my daily walks, thick-soled, high-tops. I list the treatment dates, crossing off num¬ bers 1 and 2, beginning the process I will continue for the next four months and beyond, of writing everything down to keep myself from succumbing to panic. But I am frequently in a state of fear. If Douglas is more than fifteen minutes late, I begin to cry with the grief of a child abandoned, incapacitated and alone, and when he returns from a run, a trip to the store, a little late from work, I sometimes have to turn my back on him, close a door behind me, hide my shame. I try to love my body, take care of it, look at it in the mirror despite its ordinary signs of aging and the not so ordinary long indentation on the side of my right breast. But often, it doesn’t feel like mine. It has been cut into, entered, poisoned by strangers. These assaults, I am warned in printed releases I have to sign, may have un¬ predictable consequences to my heart, my liver, although I am assured that “probably” everything will be fine. But I am suddenly aware of my body parts as if they are deli¬ cate infants needing my protection, part of myself and apart from myself at the same time: my liver, my heart. One night Douglas and I make love, the first time since the surgery, and just as I knew would happen the mo¬ ment he is inside me I begin to cry. Not so much cry as keen. I sound like a woman in mourning, a low wail to the heavens as she watches a coffin descend. I hear my own voice as if from far away, as I did when I was in the hardest part of labor, giving birth to my sons. In the past months of this lonely journey, I have seen how I cherish beyond measure the old love between Douglas and me. But ordinary vocabulary does not suffice. Old implies worn, or even worn out, but I mean it in the sense of an heirloom, precious, reliable, rich with history. People say I am strong, but he has seen the fear, knows how many nights we have slept with the light on, held me when my sobs seemed bottomless, listened quietly, at times hold¬ ing his head in his hands while he looks at me sadly, to my shouts of rage at the American medical system, at rude nurses and doctors who are afraid of pain and suf¬ fering, at tumors that are over one centimeter and so re¬ quire chemotherapy as a treatment that perhaps, but not 26 definitely, might stop the spread of what, I am informed repeatedly, is a systemic disease. Otherwise, I would have told them to cut the breast off, take it, I would have said, and leave me be. When he gently lays his fingers against my wounded breast or touches the still partly numb right arm, I think of blood, of vomit, of the terror of losing my hair, which I’ve been assured will not happen with the particular combination of chemicals being injected into me. When he moves inside me I lay my hand on my own hair as if by pressing down I might keep it rooted there, and I am lost somewhere inside my body which is vast, foreign, yet some poor fragile thing. Then in the next moment I fill it again and know the difference between his touching and entering me and all of them touching me, entering me, actually entering the flesh of my breast and cutting away tissue for testing, for saving my life, yes, but cutting parts away, parts I have never seen my¬ self but picture as throbbing, raw, and I am unable to say how hard it has been and how dearly I love him because my need is bottomless, it will swallow us both. And so I surround myself with layers of his silence until I am in¬ side it and can feel the words he might have been able to say at some other time, in some other life. Nor does he cry with me, but tonight I am reconciled to this habitual ab¬ sence of words and in the darkness of the room, against the comforting, damp sheets, after awhile I am able to say it, it has been so hard, and to repeat it and repeat it as if this simple phrase is a baptism, or a burial song. The next morning, Ruthie, oldest intimate of my soul, arrives with her dog, Puto. We walk the narrow streets leading toward and away from the bay, talking of our lives, pressing constantly for some deeper knowledge framed in words that will enable us to escape the demons of depression and fear we have so often faced and fled 2 7 together. I consider her very brave, and often dream of her exploring remote islands I am frightened to visit be¬ cause of dangers lurking in ocean storms, or in the broad deserts she and her daughter are willing to cross in order to swim in some perfect lagoon. She dreams of me and the places I have lived as havens she comes upon when she is lost. Accompanied by her dog, an exceptionally intelligent animal whose only fault is that he barks in¬ cessantly when he’s excited, which he always is on long walks, we wander around roads leading to mansions sur¬ rounded by gardens, expansive lawns and high hedges that make Sally’s spacious and comfortable home seem like a functional cottage. As we walk we talk of love and need, and then she says, after a characteristic silence in which I know she is pondering some thought until she finds the precise words, “You have a great need for love, to receive it and to give it,” and the trapdoor snaps open. I have to stop and catch my breath. I am standing at the edge of the darkness. The way down is steep. I am flushed with hot shame. I am the beggar girl with catlike paws. “No I don’t,” I say to her, a child’s voice, as if I’ve been insulted and have no sensible response. “What’s wrong with it?” she says. We are stopped on the road. Puto is barking at us as if he is a sheepdog and we are his wan¬ dering sheep. “What’s wrong with it?” she repeats. But all I am able to say is, “I don’t know. Something is wrong with it. I know that much.” I am filled with images shoot¬ ing through my brain like some video rewinding, spin¬ ning its pictures backward in time. It is eight months earlier, the previous fall, shortly after Khary had gone to live and study in Jamaica for a semes¬ ter abroad. I begin to experience panic attacks when I don’t hear from him every few days. (He cannot get 28 a phone installed for several months, and so I have to wait for him to communicate with us from pay phones, which are not very numerous in Kingston.) He is reliable and generous about calling me far more frequently than most grown children will call their mothers. Neverthe¬ less, about a day before he is due to call I become ob¬ sessed with disaster fantasies so vivid I sometimes have to ward them off verbally, talking back to old demons, often out loud while walking down the street. After several weeks of this, I consult a famous thera¬ pist on the recommendation of a friend who is a therapist herself. Over the course of about four weeks, for reasons I will never fully know, this woman frightens me, hurts me, and weakens me even more than I already am. She interprets my relationships with my sons critically, cast¬ ing me as an overbearing, intrusive, and deeply hostile mother, a very bad mother indeed. Being fairly sophis¬ ticated about psychotherapy, its theory and practice, I twice try to defend myself, questioning her interpreta¬ tions, and twice she acknowledges that she has been too harsh, apologizes, and even wonders out loud if she, a woman who does not have biological children, is too “child-identified” herself. Then she does it again. What is astonishing to me is that I do not leave immediately but remain for a month. I will never again underestimate the power of therapists, the vulnerability of patients, even the least naive. It’s a dangerous business — this putting your life in the hands of a stranger—an action not to be done carelessly, or without restraint. There are ways in which I like her, of course, and keep hoping that with Gloria gone I have found someone new to help me through recurring bouts of depression and anxiety, of which these panic at¬ tacks are the worst symptoms I’ve experienced in years. After some weeks, I describe her and the things she is 29 saying to me to Leona, who is very knowledgeable about therapy herself and who becomes furious in my behalf. As soon as she begins raging at the therapist’s stupidity, callousness, and downright wrongness, insisting that my sons are not only strong but devoted to me, not only “separate” in their own lives (that most overriding proof of “good mothering”) but also profoundly connected to Douglas and to me (which few seem to value much at all), I understand that she is right, that I am being broken down by this strange and in some ways likable woman who for some reason dislikes me or is unbalanced by me, and that I can never return to her. I call her and tell her just this, and when she does not bill me for the sessions, I take it as an acknowledgment that she has been wrong. Nevertheless, her accusations take root. My capacity for belief in disaster regarding my children is thoroughly tied to my fear that I have been a “bad mother,” just as my surely once more malleable and ordinary belief in my badness as a child had been hardened, as if with gravel mixed into clay, by my mother’s death and the circum¬ stances surrounding it. One day when I was seven years old and my sister four, we were sent away to an aunt’s home, and when we re¬ turned two or three days later, our mother was gone. Gone for good. Her clothing had been cleaned out of the closets and distributed to Goodwill, or to relatives and friends. The suede and leather purses I played with, changing black for blue as she changed her elegant out¬ fits for each day’s work; the collection of artificial roses, violets, and lilies she wore in her lapels; and the stack of flowered embroidered handkerchiefs — all were gone. My father must have snatched one from the clutches of whoever was dispensing with her physical presence with 30 such efficient dispatch, because I found one among his things when he died, and I still have it, a pattern of pink roses on a background of white, folded among the few mementos I have of her. No doubt they believed her children would be better off not witnessing the awesome dismantling that occurs after a death, as they believed, with such mistaken certainty, that we would be better off not attending the funeral. We returned to a house empty of our mother and much of what she had personally pos¬ sessed. The household she had created around her remained, however: the expensive furniture, the pale green china, the cut-crystal inkstand that sat on a graceful silver tray. She was a successful businesswoman, my father a barely paid radical activist, and over the years, with my father in charge of housekeeping and money scarce, possessions grew shabbier. A green velvet armchair that had been her favorite place to sit fell apart and disappeared. We began to use yellow plates bought in the corner hardware store for dinners that now were informal family affairs more suited to my father’s working-class background and tastes than the carefully served meals of several courses, restricted to the two of them, my mother had preferred. The crystal inkstand looked more and more anachronistic on its bookshelf, surrounded by my father’s dusty half- tom books on Marx, Lenin, and Soviet fiction. When my father died, and we were grown, we pulled it out from the back of the grimy shelf and gave it to my cousin, whose house and housekeeping standards would properly show it off. But through all those years, I remained haunted by the question — where did she go? I could not comprehend the finality of her absence, and since ours was not a reli¬ gious family, there was no shared mythology to attempt 3i an explanation. I developed the idea that if I kept a close enough vigil, thinking of her every minute, I could bring her back. At times, it seemed I was successful. A few years later, when I was in the fifth grade and a school monitor, I watched a thin, dark-haired, elegantly dressed woman kiss her child good-bye near my post at an outside door. But then, probably made uncomfortable by my relent¬ less staring and conspiratorial smiles, she began taking leave of her son farther down the block where I could only glimpse her outline in the sun. And so I realized it hadn’t been my mother after all, come back to watch over me, although, for mysterious reasons, having to pretend she was the mother of somebody else. I returned to my more controllable fantasies of her ghostly presence in my room, behind her photograph on my wall, or within my own skin. When my vigil failed, if I thought of other things or other loves too long, I was responsible for her remain¬ ing dead, I believed, just as my desperate need of relief from her dying by hoping for her death had hastened her end. I had killed her. I was guilty of this terrible thing. Throughout my life this belief will surface, then descend into a distant shadow again. But the distancing is never remote enough to destroy my sense of culpability, the threat of punishment lurking close behind. There were lies that reinforced both guilt and connec¬ tion, the most dangerous being the idea that I looked exactly like her, was exactly like her. For a child it was an easy piece of syntactical magic to edit out the like. I was her, except that, like many mythical heroines, I had to pay a steep price for my power. She was so beau¬ tiful that people stared when she walked into a room, so brilliant she could manage a career as a successful 32 businesswoman while still doing courageous, clandes¬ tine political work, and she possessed an indefinable and awe-inspiring quality called dignity I could never fully comprehend, although it seemed to have something to do with keeping your feelings under control (mine were notoriously intense, a characterization I responded to with both pride and shame), and not becoming overpow¬ ered by your sexual desires. I developed a life-shaping ambivalence to this identification, wanting to be her and thus somehow with her again, but also wanting to be dif¬ ferent from her in order not to be dead. It was a false mythology. I recently saw an old film of her, made only one or two years before she died, and I was reminded that I didn’t resemble her any more than the average child. If my interests and talents are any sign, I am not like her in temperament or character either. She was an elegant woman, deeply concerned with appearances, whose need for personal success was evidently as great as her need for love. It was my father whose passions were tropical, humid. He sweated when he was thrilled with some piece of music, actually salivated visibly when he was reunited with an old, beloved friend. He longed for my sister and me with unashamed grief when we were growing up and trying to get away from him. He gave us, whenever we asked, and when we did not, anything and everything he had. Another sort of lie — more specific, concrete, but equally effective for my self-blaming purposes: she died not of cancer but of a “slipped disc.” This distortion was perpetrated by my father while she was still alive so that I wouldn’t speak the terrible word, cancer, in her pres¬ ence. But several weeks before her last hospitalization, I had called to her in the night after waking from a night¬ mare. I heard her call back to me, shouting my name, not 33 a comforting, maternal response but a cry of pain of her own and then I heard a crash. She had tried to get out of bed and come to me, it turned out, but her bones were already weakened by disease and when her legs could not hold her, she had fallen onto the floor. For the next ten years I remained convinced that her fall, in response to my need, was the cause of the slipped disc that killed her. This narrative itself was a distillation, of course, a rep¬ resentation of deeper, more complex stories, classic tales of childish rage at the withdrawal, even into illness, of a parent, especially a mother; of the influence of gender and emerging sexuality on such a wish when the father is beloved too, magnetic and powerful; of the wicked wish that the abandoning mother who is too weakened and frail to pay attention to children and their needs would be punished and die. And then there are the particularities of history, less generic, harder to unravel when the time comes. For this was a mother whose leavings began long before the final leaving, so the daughter’s longing was covered over by resentment and anger long before the final anger would become entrenched, veiling the long¬ ing that seemed to form the center, which felt at times like an absence, of her life. Easily, comfortably, I slip into the third person. Even old passions fill me with mysterious shame. Yet I believe that I must find the courage to write the story of that short, threatening breakdown as a chapter in this grief narrative, this cancer journal, must say in words again this piece of self-knowledge I learned almost talmudic- ally with Gloria, going over it and over it, layering it with interpretations and associations, yet forgot and for¬ get, again and again. I believe that what I love will be destroyed. I was a bad girl and my mother died. If I am a bad mother (and what mother is not a bad mother in addi- 34 tioii to whatever and whomever else she is; the evidence can always be found) disaster will take my children. On a Wednesday afternoon, there is a call on my telephone machine from the long-distance operator in Kingston, Jamaica, but no one is home and as the call is collect, Khary is not permitted to leave a message: an ordinary event that takes on extraordinary ramifica¬ tions for me as soon as it happens. He was trying to call because of some emergency but couldn’t get through, I decide. It is that simple, the moment that swift. A call that, at another time, might have had no effect. A mo¬ ment that, in ordinary time, would have moved into the past like other moments, instead of exploding into dark smoke that remains in the air, stuck to the walls, perme¬ ating my lungs, literally shortening my breath for days. Ordinary time fractures for me, and I become an inade¬ quate vessel for past and present, dangerously enmeshed. The idea that something is wrong takes hold and I cannot loosen it for the next four days. The only defense I have, besides talking for hours to Leona on the phone, is writ¬ ing. I write a part of a chapter for the book I am working on — an orderly, interpretive piece of nonfiction — and I still don’t know how I managed to accomplish this task except that it suggests the genuine change that has taken place in my years of work with Gloria. The self that self restrains might be fragile at times, but at least she is not entirely illusory. And I write in my journal, where no re¬ straint is required, every hour of every day. While I am writing, I begin to feel a slight faith that he is really okay, but the faith is as ungraspable as light. I cannot gather it, or move into it, but only glimpse it as a reality next to me, from which I am somehow excluded. I only know that if I stop writing, even for a moment, I will 35 be swept away by terror. So over and over I write down reminders of ordinary reality, signposts of ordinary time, as, less than a year later, I will do to mark the passage of weeks through chemotherapy and radiation that feel, also, like a punishment, a permanent hell that, because it is deserved, or at least destined, will never cease. I list all the late nights waiting for my sons when they return, happy and well, all the planes I thought would crash that landed safely, all the viruses that did not become some dread disease. By Saturday morning I have cried for so many hours, pacing from one comer of our apartment to the other and back again, that Douglas has run out of sympathy and is becoming desperate and angry. I understand that I am making him feel utterly helpless, and that he is convinced I have the ability to control this madness and am refusing to do so out of some terrible self-indulgent need to over¬ dramatize my life. I try to come out of the terror, and I can’t. Perhaps I am resisting my own best efforts in some banal need for punishment, but it feels like the opposite at the time: I am being punished for the extremity of my needs. On Saturday night I call the Kingston, Jamaica, police station to find out if any Americans have been reported missing or murdered that week. The officer on duty is extremely pleasant, much more so than those at the 24th precinct in my neighborhood whom I have sometimes called with similar questions. No violence has been re¬ ported, the charming voice assures me. Nevertheless, I book flights to Jamaica for the coming Monday morning, just in case Khary hasn’t called by Sunday night. In these mad actions and irrational plans I grope for and even find a bit of control. Finally, I call one of his professors, a number I have been given for emergencies, and although 3& fearing Khary’s anger if everything is indeed fine, I ask this man when he has last seen my son. He is as gracious as the cop, assuring me he is a parent too and understands my concerns. (But of course I am speaking to him in a normal voice, for the duration of the discussion suspend¬ ing my wild tones.) He has seen him, alive and well, the previous Thursday, and although this fact undermines my theory that something disastrous happened Wednes¬ day night when the phone message was left, it takes only a few minutes after hanging up for my panic to rise again. I can hear my father’s voice after my mother’s death, pleading: Stop that crying, crying isn’t going to bring her back, when my sobs and screams made him feel, no doubt, as helpless as Douglas does now. Behind my father’s I hear my husband’s sighs, even his breath, I imagine, furious and desperate. I listen to Leona’s voice, reminding me that many losses are packed into this panic. I try to recall Gloria, literally call her up by reading old journal entries about her, and come across entry after entry describing her efforts to get me to look into the place where loss becomes abandonment and love turns murderous in its power to destroy. From that long-ago time, I try to reenter the present so I can achieve the “clarity of self-respect” she insists I deserve. But I have reached the point of no return. There is nothing between me and my savage terrors, my most vigilant obsessions, my weakest self. When I am at the bottom, I realize that the panic itself has turned into grief, as if the worst has already hap¬ pened. When I remind myself that I am frightened but really know nothing for sure, I am a little better for a few minutes, even an hour. But then the anxiety mounts back into terror and terror into grief. The future collapses with the past into the present moment where I sit alone in a 37 room, conjuring up the image of a face until it is nearly solid flesh, keeping a ruthless vigil in my head. Finally, late Sunday afternoon, Khary calls. He sounds normal, and why shouldn’t he? He is normal. His life is normal. He said he would call by Sunday, and on Sun¬ day he calls, so he figures his mother is normal too, and I certainly try to appear to be, instantly casting the tone of my voice into a false but familiar rhythm, as calm and low a cadence as I can manage. We talk only a few minutes, and then I hand the phone to Douglas and leave the house to walk. I am exhausted and frightened. Anxiety remains at a low level for weeks, like muddy waters after a murderous flood. The self I re-encountered is ghostly, familiar, and powerful. I do not want to claim her, yet I am scared she is all I have ever really had. When I am diagnosed with breast can¬ cer the following May, that ghostly other, that scratching cat-girl, is the self I fear most of all. During the week before surgery, and the harder weeks afterward, waiting through medical consultations and sleepless nights for a final diagnosis and treatment plan, I can become nearly paralyzed by the thought: What will I do if she gets out? During the summer months I am not teaching, and be¬ tween chemotherapy treatments I spend as much time as I can arrange near the water. Ruthie and I climb over huge white dunes striped with wide meadows of tall grass to reach a famously beautiful Wellfleet Bay. The tide is extremely low and large sandbars spotted with watery patches of seaweed and shell are visible. Walking over this damp, flat terrain, you can hardly tell where the land ends and water begins. Both appear to be brown, then blue, then brown again. The waves are tiny and gentle, a thin sheet of sparkling wetness over sand. In the distance a couple emerges. They undress and walk for yards until the bay is deep enough to swim, and even out there it is so shallow that when they cease swimming and stand up, the water only reaches their thighs. I can see signs of age on their bodies, white hair, a slight roundness in their shoulders, a fleshiness in his chest, a boniness in hers. And then they embrace and kiss for some time — their aging bodies, the calm, shallow water—all of it comforts so deeply my legs feel weight¬ less, my body fluid. I can walk for miles in my sturdy high-tops. I can fall into an easy sleep in the sand. But at the ocean I am agitated, unsatisfied, afraid to risk the cold water even at low tide. I don’t know how strict I must be about the sun, as the nurse was so casual and dis¬ interested. “Oh well,” she said over her shoulder while preparing vials and tubes, “best to avoid it altogether.” But when I asked if I could sit in it for short periods, since I so love the beach, she said with equal casualness, “Oh sure, but best to wear a hat.” I am covered, forehead to ankle, with #15, a hat, an umbrella, and every tiny pain is a cause of anxiety as the days move inexorably toward Treatment Number 3. When I try to risk the water, the ocean I once adored, I am filled with fear of waves and tides. I cannot go in past my knees. Only months later, when all the treatments are finished and I reenter my ordinary life again, when my days are not marked by a number checked off on a page, will I dream that I am standing on a beautiful wooden dock, watching a brave young boy dive into dark, still water where the ocean meets the bay. At times, as if with a poisonous fluid I cannot stop, I fill up with anger: at Ruthie for sudden small distances; at people on the beach for talking too loudly; at Douglas for remaining at the house and not loving the water as much as I do; at the ocean for being too cold, and the sun merciless. The only thing I don’t feel angry at — but only theorize abstractly that surely there must be anger and it must be related to all these other angers — is the disease of cancer that has threatened my life. The week before, on television, I heard the famous breast surgeon, Susan Love, describe cancer treatments as “cut, poison, and burn.” I have been cut, am in the midst of being poi¬ soned, and have the burning yet to go, and when the cut¬ ting and poisoning and burning are done, I can be given no assurances that I shall not have to go through it all again. As long as I am “in treatment” I feel I “have” can¬ cer, and cannot seem to fully grasp that the tumor has been cut out, the surrounding tissue and lymph nodes found to be free of disease, that the treatment, which I have seen nearly kill two close friends, is “merely preven¬ tative” and, compared to other harsher chemical combi¬ nations, “mild.” Anger fills me and grows into rage all day and into the evening. I try to keep it at bay, but it gathers every small dark rivulet into itself. It swells. I should probably walk out into the hills where no one can hear me or be harmed by me and scream as loudly as I can. But I keep the screams within. I freeze, grow stiff. I snarl for breath. At about midnight, in the back bedroom Douglas and I use, with its sheer white curtains, worn flowered wall¬ paper, old wooden chests painted dark maroon, my anger finally dissipates and now here at last is my fear, my plain terror of the real thing. And once again, although I have been sniping at him all day, Douglas takes pity on me and holds me until my shoulders descend, my spine curves out of its tight rigidity, my muscles loosen their grip on 4 ° my neck, my fingers, my arches, the cat-girl slinks away, and I begin to fall asleep. A heat wave covers the East Coast as it does almost every summer for several weeks, and it combines with my altered body chemistry to make a sickliness chronic, a constant annoyance of nausea like a slimy seaweed clinging to the surface of the sea. Back in the city, I go to see the film, II Postino, partly to take my mind off things. In this story of Pablo Neruda’s friendship with a simple island postman, I am moved by the power of art to influ¬ ence both politics and erotic love, by the links among all three. The politics are communist in the simplest sense, a love of ordinary people, which the film connects to a sen¬ suous passion, to the natural world, and to poetry. I am trying as much as possible to focus on art, my own and that of others, believing, like the postman, in its myste¬ rious erotic power to redeem. Four doctors — two oncologists, my surgeon, and my own internist whom I trust as a friend — advised me to undergo chemotherapy, although my case, with a 2-cen- timeter tumor, was right on the borderline. There were estrogen receptors to measure, slow-growing and fast¬ growing tumors to distinguish, implications of being post- or premenopausal: conditions that have been ren¬ dered dangerously ambiguous by the prevalence of estro¬ gen replacement therapy, a regimen of hormones I was on for over ten years. There are various chemicals in different chemotherapies to consider; some cause hair to fall out, some do not. Although the studies are not yet definitive, current practice recommends chemotherapy for everyone of a certain age, except those with the tiniest of tumors, and so I decide to submit to the business of poisoning myself in hopes of killing off dangerous, ravenous cells. 41 Oncologists seem to feel that in their relations with patients they have to choose between falsely optimistic cheer that amounts to denial, or ruthless verbal attack. The first oncologist I consulted looked me straight in the eye and said: “This is a systemic disease. The treat¬ ment is dangerous and difficult. You will immediately lose all your hair. Don’t let anyone tell you it will be easy.” She then recommended a course of chemotherapy of the harshest kind and followed up by undermining my internist, a man whom she knew well and the only medi¬ cal person in whom I had complete confidence. When I sought a second opinion, at first I liked the seemingly more easygoing doctor and his “chemotherapy specialist” assistant and felt encouraged by their assurances. This doctor recommended a less toxic course of treatment. My blood count would probably remain at low normal, my hair would not fall out (“maybe get a little thin¬ ner, but you have nice, thick hair, you can afford to lose some”), and although I might get “a little sick,” I would probably be fine. Perhaps such reassurances enabled me to wake up one morning and, accompanied by my sister who actually held me in her arms as the subway lurched downtown, go to the oncology unit for the first time. But as the months wore on, I came to see in this attitude a denial of reality, even a deception by the medical people, because to be reassured that one was not in imminent danger of dying seemed to mean that no talk of suffering or fear was acceptable at all. Before every treatment, I experienced almost uncon¬ trollable anxiety. Although there was no pain involved in the event itself, and I could sit up in a bright room with the door opened, I felt trapped and imprisoned dur¬ ing the entire hour I was attached to the iv, and the feeling of threatening panic continued until I was back 42 - at home. I have often wondered since then why chemo¬ therapy was so much more frightening to me than sur¬ gery or radiation. Perhaps it was the sight of the liquid dripping into my vein, its seeping, nauseating, unstop¬ pable penetration; or the knowledge that this form of treatment is so full of uncertainty and potential dan¬ ger; or the subtle and yet dramatic physical changes one sees and feels in the body and face — the eyes cloud, the skin seems to pale, hair texture alters even if it doesn’t fall out. I know I felt completely out of control of my own physical boundaries, and the experience of nausea opened trapdoors to deeper, more primal feelings of dis¬ gust. The source of the nausea was inside my body, and became entangled with old feelings of shame. During the months of chemotherapy, I was aware of a vague, chronic sense of humiliation. I was reminded of the dead, disintegrating bodies of my dream. After the first treatment, I was so relieved to be back home I actually felt joyful despite the weakness and queasiness I experienced for several days. After the sec¬ ond I engaged in a mad rush of physical activity, trying to copy a young Israeli woman who was my “treatment partner,” and whose energy and optimism were both a standard and inspiration to me. In the hospital, waiting to be called in for the third treatment, I try not to look closely at the ill-looking, sometimes emaciated, often hairless fellow patients. I want to feel stoical, self-contained, and these capacities require that I also feel distanced and different from them. Today when I enter the small treatment room, another woman is already there, attached to her i v. She has dyed blond hair, good long legs, a body that looks about forty beneath a face that looks about sixty-five. Inserted into her chest is a tube that receives the iv through which 43 her weekly chemotherapy drips, treating her lung can¬ cer. With tears in her eyes and the sudden intimacy I’ve become used to with treatment partners, she tells me how she hates and fears these weekly treatments, how she can’t sleep at night for fear. Just then, the nurse, the “chemotherapy specialist,” enters, a sweet but distracted woman who once inserted the needle into my right arm, the arm that has lost its lymph nodes and is never sup¬ posed to be pricked with a needle, nor even squeezed by a blood pressure monitor. Then, obviously afraid of get¬ ting in trouble, she blamed me because I had held out the wrong arm, and indeed it was my fault as much as hers. I had been advised by doctors and books since the be¬ ginning to take charge of my own illness. I knew I was never supposed to be treated in that arm. But in my anx¬ ious state, I didn’t realize it until I tried to pick up my pen to write in my journal and realized I couldn’t write my way through the threatening forty-five minutes, as I often did, because my right arm was attached to a needle, a long tube, and an I v. Now, she tells the other woman that she is bringing in a new patient who will need the same implanted tube, the same weekly chemotherapy. “But we don’t want to scare her,” she whispers like a conspiratorial schoolgirl, “so keep your mouth shut.” The new patient, who is young and frightened and who has recently had a mastectomy, is brought into the room. My partner obeys orders, per¬ haps believing it is kinder to lie than to terrify, and says cheerfully, “Here, have a look. See? It’s nothing really.” Nurse and doctor echo the mood, smiling, patting, and chattering as if we are at a party. My somber expression and tone annoy them more and more as the weeks go by, as do my questions about physical reactions that depart from their predictions. “Well, it shouldn’t happen,” they 44 will say when I describe days of weakness. “Are you back at work?” — implying that I am sitting around thinking about my illness too much, and that is why I am weak and have stomach pain. “I’m a writer,” I mumble, hoping they will misunderstand or ignore me, because I certainly can’t explain that I am writing about my illness, rushing home after every treatment to make copious notes. “It’s not so bad, is it?” I am asked repeatedly, and I am expected to answer optimistically, cheerfully. Not to do so makes me feel like a failure, purposely complaining, a bad girl, and so, like my partner, I keep my mouth shut, having learned long ago how few people can understand the emotional intensity I live with all the time, which I try to manage but can never deny. If the expression of fear and pain to a receptive, sympathetic ear is an aspect of healing, as I believe is true, these rooms are not the place to engage in such unpleasantness. I learn to wait for visits to my thera¬ pist, or to my internist, a rare doctor who is afraid neither of pain nor of the fact that he cannot always “cure” it, yet might assuage it by listening to the narrative of another’s experience with its often strangely familiar detail. In this office, the destruction of possible cancer cells is accomplished with technical efficiency based on statisti¬ cal analysis. I am given computer printouts that indicate the relative normalcy of my white blood count. I am given Tylenol to lessen the headaches caused by the anti¬ nausea drug. When the plastic bag of chemicals is empty and the needle removed from my hand, I am always quite dizzy, but leaning on the arm of Douglas whom, I am scolded by the doctors, I should not really need to ac¬ company me anymore, I can return home. In terms of emotional isolation, I feel very much as I did when I was pregnant and had my first child. In both experiences, all the books, doctors, and even some of the women I tried 45 to talk to assured me of how easy it all was, and so, be¬ cause it was not only difficult but often overwhelming for me, I felt alone, weaker than they were, a failure in ways as familiar and almost as old as my life. “You’ll adjust,” I was told by numerous people seeking to help me when I was a child and my mother disappeared for good. I did, if adjusting means one doesn’t keep on crying every day. But feelings remain large in me, needing recounting, re¬ phrasing, revising as the years go by. My partner raises her eyebrows at me after the new patient leaves the room, her cynical smile belied by the tears filling her eyes. “I didn’t pay attention to the signs of my colon cancer,” she tells me, “so it went to my lung, and now I’m paying the price.” Treacherously, I count off our differences, distancing myself from her with notches of relative well-being. But when I look into her eyes I see what I don’t want to see. I see that this woman knows more of what I am feeling than Douglas, or my children, or my friends. She knows because she has cancer, and so I know that I have had cancer, as my mother had cancer. She, too, is suddenly real to me. I have counted on our differences for too many years to know how to get along without them, that dark definitive line I first tried with all my might to cross, then growing away from her, older and older, was glad to see gathering distance behind me. But I see her now, lying in a dark room — young, in pain, and afraid — her legs too weakened to uphold her body when she gets out of bed to respond to her child’s cry. I see her room, dark and eerie, the white of her sheets glowing slightly in the night. Then I see the room in the light of day, only my father’s room now, her bed, her clothing, her body all gone. I can almost remember her voice, almost hear her actual scream before I back away quickly out the door and into the hall. 46 In the treatment room, staring at the open doorway, I am still attached to the i v that leaks its final drops into my vein. I turn back to my partner and reach out to touch her hand. That night, I dream I am swimming in a dark, warm lake. Although I cannot lift my right arm to swim as well as I once could, I am making progress through the thick waters, and in the slow, effortful movement, I am soothed. Three days later, the heat wave breaks. The sky is gray. Wind whips the clean light curtains in and out of the open window in my living room. I walk out onto my small terrace feeling a cool, soft rain on my face and bare feet. Newly planted flowers blow in the wind. I breathe deeply, noting the absence of nausea. A weird agitation I always feel for the first two days after the treatment is gone. I can be still, just feeling the wind, the rain. And what of Ruthie’s description of me as being so des¬ perately attached to love? My grief at losing my mother is relived with each separation from my children; the passion I once felt for her has been replaced by an attach¬ ment to them so central to my being I try to hide the ex¬ tremity of my own need and pretend to a freer love, more spacious and pure. The early confluence of extraordinary and even ordinary anger with guilt and punishment will haunt me as long as I live, each time I love deeply and fear abandonment, or am not loved in return. I have under¬ stood the indisputable truth of these sentences for some time. But now I am after another distinction, to unlock in myself a confusion between intensity of feeling and extremity of fear. The second, I hope, can be analyzed and perhaps diminished by retelling and renaming past losses, breaking the tie that reforms repeatedly in me be- 47 tween old threats and new, opening a wide chasm filled with murky rushing waters of past, never fully evapo¬ rated sorrow. The first, I am trying to see in a new way, to be brave enough to face the notion that the power of my love and need for love is neither crazy nor bad, even when reciprocation is uneven, or return denied. Once again, I am about ten years old, a monitor at the school door. I wanted to go down on my knees, crawl on my belly, pound the concrete with my fists and beg that woman to be my mother. But she must have seen the des¬ peration in my eyes, perhaps she was frightened of me, or thought me pitiful, when she began leaving her child farther down the block. When I see myself staring and longing, I feel both shame and anger and I try to mute the sound of my anguish by imagining the replacements I found. I am too far away to see the details of the mother’s embrace, but I begin to whisper to myself about the pre¬ cise way her mouth grazes the boy’s cheek, her fingers moving through his hair, down to his forehead where she smooths his eyebrows with her thumb. I keep watching, turning away from my monitoring duties, even at that distance trying to feel the love, to steal it and let it fill the emptiness inside me with images and words. Intimacy Itself What art was there, known to love or cunning, by which one pressed through into those secret chambers? What device for becoming, like waters poured into one jar, inextricably the same, one with the object one adored? Could the body achieve, or the mind, subtly mingling in the intricate passages of the brain? or the heart? Could loving, as people called it, make her and Mrs. Ramsay one? for it was not knowledge but unity that she desired, not inscriptions on tablets, noth¬ ing that could be written in any language known to men, but intimacy itself, which is knowledge, she had thought, lean¬ ing her head on Mrs. Ramsay’s knee. — Virginia Woolf, To the Lighthouse I am sitting in Aaron’s room. Throughout this intense winter, nearly every Friday, the day of my session, there is a storm outside. I hear the wind whipping down the street, rattling the windows as I talk to this man I have known less than a year, yet who has become more inti¬ mately aware of my interior life than anyone I know or love. The afternoon turns dark early because of the storms, the shadowy light gives a gray cast to the muted colors of the room, to his white or light blue shirt and gray pants, to his pale skin and aging face. I love the storms — the sound of them outside and walking through them the ten blocks from my apartment. No mask of anger or anxiety covers the more difficult emotions. My sorrow is sharp and precise. It is not threatening. Like the storm, it is already there. I came here for the first time only two weeks after my breast surgery. Within three months I came to trust Aaron, within six months to love him. It is a strange word 49 to use for someone you hardly know, whose knowledge of you is only of your innermost thoughts, who is not familiar with how you talk about ordinary things, how you cook or walk down the street, or sleep or eat. It is a distillation of love, perhaps, bringing love down to some essential component. Just as, in this narrative, I am try¬ ing to create a distillation of all the raw and chaotic feel¬ ing I have experienced in the past few years; not simply to describe desolation or anger, but to find some essen¬ tial reality beneath them both. This winter I enjoy the immense luxury of a sabbati¬ cal from my teaching job. I focus my life on writing this narrative as if it were a heavy porous log I cling to after the ship has long sunk and disappeared beneath dark waves. One or two hours a week I confess the details of my interior life not only to the pages of my journal, but to another human being. I sought help in a kind of panic that life was slipping away from me, that in some mysterious way two years of despair had worn down my immune system and helped give me breast cancer. This may not be true, of course. Nevertheless, I proceed with my three-part effort as if it were. I reread old journals, then rewrite my stories hoping to glimpse meaning or order through an altered perspective. I search for con¬ nections among old and recent sorrows, and for words resonant enough to stand for the many parts that remain untold. Once a week, I tell my stories to Aaron. I fight off shame, reticence, fear, embarrassment, modesty, faint¬ ness of heart, and lack of faith. Thoughts must be caught and faced and said out loud, and they must be said to another person, to him. He stares back at me with enor¬ mous intensity. He speaks of his associations, makes in¬ terpretations, at times reveals emotional reactions of his own. He keeps well within the boundaries of therapeutic 5 o dialogue and psychoanalytic practice, but the emotion is real. I am counting on that. It is only in the authenticity of his emotion that I am brave enough to relive the stories I believe I must relive in order to recover my health, to face the loneliness at the center of my life. Now, reading back to the daily notes I made during the six weeks of radiation treatments, I come upon a de¬ fining image whose meaning unravels infinitely, it seems. I am lying on the table under the radiation machine, be¬ fore the actual treatment begins. They turn out the lights in order to adjust the rays, which are visible only in the dark. While it is dark, my breast is reflected in the lens above me. I see a silhouette of my breast behind the com¬ puterized red lines moving and jumping across the lens. It is the breast, as the doctors called it, and it, the breast, is reflected in the lens so it can be shot through with per¬ fectly aimed radiation. But it is my breast, and I want to reach out for the reflection, trace the line of the curve — its delicate, singular, unique grace, the curve so familiar to me, like the print of a painting you have had for years on your wall and you come upon it unexpectedly in a museum and you think—what is it doing here? Or, like a beloved piece of music building toward a particular series of notes you wait for and wait for, then soar with as the perfectly known melody is found again. Throughout the weeks of radiation, this view of my breast is so painful I have to close my eyes against the dark reflection until, the point of the machine perfectly in place, my arm raised above my head, my body slightly off center so that my right breast is raised toward the machine, they turn on the lights again, the reflection disappears, and I am sur¬ rounded by bright, stark emptiness. Everyone leaves the room. A loud, screeching noise begins, indicating radi¬ ation is in progress. Then loneliness is a river I am swept down, rushing into my past, which grows clearer and clearer as I move. Alongside that river is another place that scares me much more than loneliness — my anger, my rage. As long as the two remain parallel, I can keep a safe distance between them, but then they converge, water soaking land, land filling water, until thick mud is all there is. I move through it, my ankles and calves held fast in the dirt, which hardens like clay. Just below my anger, which these weeks can rise instantaneously like a sudden volcano spewing forth ash beyond my control, is always the image of my breast, its graceful silhouette, and the image calms my anger even as it floods me with remembered grief. It is a year before, the early spring of 1994 and Douglas’s brother Simeon is dying of a i d s. He has been struggling against an intestinal virus for five months, but he has lost the battle and the virus has gone to his brain. In a hos¬ pital in San Francisco, he lies in a coma from which no one expects him to awaken. His mother, Lois, has been with him for months, and now his remaining brother, his sister, Sherrill, his niece Tiffani, Khary, and I fly to San Francisco where Adam will join us. It is a strange kind of appointment. We are going to accompany Simeon to his death, to obey his clearly stated wish that we all be there when he dies. At the airport, we are picked up by Gabriel and Pete, Simeon’s friends with whom we will become temporarily, yet profoundly, intimate over the coming days. They drive us to the hospital where Lois is utterly distraught, walking the halls in her plaid nightshirt, having just re¬ ceived the worst news. Douglas looks more upset than I have seen him in years, and remains a long time in the privacy of the room with Simeon, holding his brother’s 52 hands, whispering to him on the chance he might be able to hear. And then, we take him home to die. Like many others, I had fallen in love with Lois when I met her twenty-five years before. She taught me a great deal about African American life and culture, explain¬ ing generously to her white daughter-in-law the intri¬ cate realities of racism and history most whites fail to understand. She guided me through experiences during Adam’s and Khary’s childhood I could not have managed nearly as well without her. I had written about her in my novels and memoirs, and she was a central support to me in the book I was writing about race. We both grew up as motherless daughters, and this has been a source of many commonalities between us. Dramatic, passionate, beau¬ tiful, even at seventy, she is a magnetic woman of many gifts. But disabling griefs over the past years — the loss of a husband, of her eldest son, now of her youngest — have shifted the balance between her magnetism and powerful love on one hand, her anger at life’s injustice and fearful self-protection on the other. “I hope he knew we’d take care of you,” she had said to me when my father died and I was twenty-seven, she forty-seven years old. She could not have imagined the tragedies ahead of her then, the patterns and intentions grief would revise. When I take her in my arms in the hospital corridor, she remains stiff, her arms at her sides. When I reach down to hold her hands, they remain fists as my fingers enclose them. Dur¬ ing all the days of Simmies dying, my grief and fear will be laced with anger — childish, unjust, selfish, passionate anger — an easier mask, like Lois’s, for longing and love. We settle Simeon in his bed in the sunroom, one side lined with beautiful windows looking out on a garden. In the adjoining room, the friends who will help us through the next eight days begin to gather. Anne, who seems like $3 a sister during that long week, whose hair is a mixture of blond and gray like my own sister’s hair. Irene, who organizes a system of food delivery from acquaintances and friends. Tom, who was Simeon’s partner for so long he has become like a member of our family. Dan, whose wife, Lee, is expecting a baby any day who will be named Simeon if a boy. Gabriel, one of Simmie’s oldest friends, is a gay man who flaunts his gayness, daring anyone to question his movements, his eye makeup, the mixture of extraordinary courage and grim humor that make up his history; he was a draft resister during the Vietnam War and spent several years in prison; he is a nurse who has helped dozens of his friends as they died of aids; he calls Simmie his sister, and postures around, making us laugh. I wonder how my son Khary will handle this gay male expressiveness, but by the end of the week there will be no question in anyone’s mind. He and Gabriel will be comrades. They will confer about medications and plans. They will embrace at the bedside when Simeon dies. Pete, Simeon’s ex-lover, young and vulnerable, is able to help in intense spurts, then leaves suddenly, as if he has to es¬ cape. Like me, he seems to feel Simeon is angry with him, and indeed, according to Lois, Simmie has been angry, and quite harsh. During one of his semiconscious states, he looks at Pete and says, “I don’t want . . .” Pete re¬ sponds, “You don’t want me here?” and leaves in tears. On the second day, I sit on Simeon’s bed and try to talk to him. He raises his hands like a cat’s paws and snarls at me. “Oh it’s just some brain synapse out of whack,” Dan says, trying to comfort me. “He’s just playing, kidding around,” says Lois, and Douglas agrees. But he knew I had grown angry with him over the years, and I am afraid, after that, to get too close to him until the very last day. 54 By the third day, I begin to experience severe stomach pains. The conflict between my hunger for this family’s love and my self-condemnation for anger as the hunger remains unassuaged will result in an ulcer by the time I return to New York. As I move through the week, this conflict drives me. I am longing for Lois to take me in her arms, for Douglas to cry with me, to feel I am the sister in the family I’ve been part of for nearly three decades. As far back as I can remember, the phrase “almost like a daughter” has haunted me. Offered with genuine love by a number of older, maternal women, I nevertheless could focus only on the “almost,” and often withdrew from the relationship, protecting desire with distance, substituting anger for need. Here, in the family closer to me than any other apart from my own, I am “almost” like a daughter again. But I am aware of these echoes going backward in time only with the indefinite consciousness that precedes words. I know I desire something not to be had, something I feel selfish and guilty for desiring. I cannot find the language to describe the feelings because the feelings themselves still make me ashamed. I turn to the sink to wash the many dishes that pile up each day, to the telephone to keep track of the numerous calls, to the broom, the sorting of newspapers, the shopping for food and medical supplies. Writing this part of the story, even now, two years later, I back off, fatigued, agitated. My neck is rigid, my shoul¬ ders ache. I see my breast on the dark lens, Simeon’s eyes focused on his mother’s face, my mother’s face becoming less shadowy. Her eyes are closed as she lies on her death¬ bed in a darkened room. A nurse sits by her side. I am peering in from the doorway, wanting to run up to her, leap on her, wake her up, but I remain quiet as I have been told to do a hundred times. Although I intended to 55 write this in a linear time frame, trying to keep to a cal¬ endar of days, circularity quickly takes over, association rather than chronology demanding expression in words. During the eight-day vigil, Lois spends all her time lying next to Simmie on his bed or caring for his physical needs with the help of Douglas, Gabriel, and Anne. I can¬ not manage the physical care — cleaning him, attaching the catheter— and I feel ashamed for this inability. I keep a notebook of information: visitors, nursing schedules, mortuary and hospice information, medications. I keep up my determined, useful housework. I talk to the friends about Simmie’s wishes to be “helped toward death,” try¬ ing to decide when we should begin to increase the mor¬ phine as the doctors have taught us to do “when the time comes.” I try to spare Lois and Douglas the specifics of that decision, feeling it is the least I can do. Every day or two, I return to my sister’s house in Berke¬ ley for some hours of respite from the dying, which is unlocking memories hunched for years at the bottom of my life. My mother’s body, fragile and helpless, is con¬ tinually before me, and I am a child again. Dust and white bone fill my dreams at night. But I am also escaping Lois’s anger. Her perfect ministrations to her child are accom¬ panied by — perhaps even kept in place by — anger with others in the family, including me. She snaps harshly. She turns her face and sucks her teeth in a familiar gesture of disapproval. She lashes out. To the doctors’ amazement, Simeon wakes up on the second day, emerging from the coma, and from then on he moves between wake and sleep, clearly recognizing his mother, his brother and sister, some of his friends. But once when I am sitting near him, talking to him softly, he asks, “Who are you?” Stunned, I return to the front stoop and stare into the sun. Outsider longing to be taken 56 in — daughter-in-law, I silently berate myself for child¬ ish needs. There is useful work for me to do. I walk back inside and stand in the doorway staring into the sun- room. Lois and Douglas are washing Simmie in a tender collaboration. Douglas lifts the frail body of his brother while their mother changes the sheet. On the second night, Adam, an actor, leaves us for his home in Los Angeles because of an important part we all decide Simmie would not want him to sacrifice. He sits on the bed whispering his own private goodbye to the uncle he loves, telling him he has to return to tape a new part on a television show. Simmie smiles, lifts his arm high and draws an arc in the air, as if to say, reach for the sky. Then, standing in the middle of the room, surrounded by people who are witnessing his grief and trying not to stare, Adam weeps a long time in Khary’s arms. The Castro district, where Simmie lived, is crowded with people and shops like the Lower East Side of Man¬ hattan, and I walk the steep hills many times a day, buy¬ ing diapers, mattress pads, other supplies, the material necessities of illness usually provided by hospitals. No institutional veil or protection exists for the dying at home, no anesthetizing of the process. You don’t leave the patient for a few hours behind a closed door while the nurses attend to the details, adjust the body to its slow re¬ linquishing of life. Biological systems don’t always break down uniformly. One thing stops slowly, then another. It is often impossible to tell what remains of ordinary consciousness and what is already gone. Simmie lies in a room with no door, separated from the rest of the small apartment by an open archway. We are as close to dying as we can get without dying ourselves. Simmie communicates with his eyes, and even with some language, which the doctors thought he had lost. “There are five of you,” he says once, looking at a group surrounding his bed. Once, he calls for Adam, then raises his lips to be kissed. He keeps insisting he be allowed to get up, and when Gabriel refuses to let him do so, he says, “Fuck you. I have to get my feet on the ground.” Another night, he tells Lois that Sallie, her long-dead mother, is in the room. Khary and Tiffani spend their days doing chores, hold¬ ing Simmie’s hands, rubbing his head, much less afraid than I am of the experience of dying. I am remembering all the conflict we had in recent years involving Simmie’s extreme need for attention, his inability, at times, to pay attention to others who needed him. I was angry, then distant, resentful of how easily he made his own needs the center of his life. Then, when I lost track of my needs, he would come to me in a dream, symbolizing an admirable, creative self-involvement. When I began this narrative, I dreamed I was in an old basement where I discovered a manuscript I’d forgotten to complete, a treasure. The manuscript was buried among Simmie’s books and files. During the week he is dying I feel too confused to face such ambivalence. I am afraid that I will prove inade¬ quate to the tasks of care. Anne and Irene encourage me while we walk around the neighborhood or sit in the blessed hours of sun on Simeon’s front steps. These two women, who were unknown to me the week before, who are still in certain ways strangers, give me the courage to continue with the death work by listening to my confes¬ sions of anger and love, reminding me of my place in the family, the need for the kind of emotional strength I can provide. My feelings are raw and ragged, but my actions are protective, my labor efficient and smooth. Like a well- trained orderly, I attend seriously to the cleaning up. The circle encloses us: Anne, Irene,Tom, Gabriel, Dan, 58 Pete, Tommy, a very warm and talkative man who is an Italian from Philadelphia, and Frank, who has aids himself. All these men and women are living in a plague time. They have lost many of their friends. Some of them will soon die themselves. Each day, we expect Simeon to die, so most nights we all sleep together on mattresses spread out across the en¬ tire floor. Lois sleeps with Simeon, holding her son in her arms. The visiting nurse tells us Simmie is exceptionally strong and could go on for days, and he begins discus¬ sions with us about administering the morphine dose based on his need. Simeon made several of us promise not to prolong his life if the virus went to his brain, and emphasized that when that happened he wanted to go as quickly as possible. Khary and Tiffani urge us to begin, but they are too young to realize how dire a decision in terms of its psychological consequences this really is. I sit by myself on the stoop, for an hour just thinking, not allowing myself to write, afraid the words might be¬ come a story and I will lose track of the barest truth. I try to picture myself doing it, feeding him the liquid that will alleviate his pain but may also hasten his death. I feel I cannot, partly because of my own ambivalent feel¬ ings and conflicts with him. But I tell Gabriel and Anne that if they can do it, I will share equally in the deci¬ sion. We agree that Douglas and Lois should not be in¬ volved since they have given their general consent, that Khary and Tiffani can advise but must not be included in actual medical decisions. Anne says we should wait, that Simeon is still awake too often and, she believes, is wait¬ ing for Dan’s baby to be born. We are called to the bedside three times before the final time, all the signs indicating imminent death, but then he 59 rallies, opens his eyes, asks for food or drink. Each time, the wracking emotions of a last good-bye are followed by the realization that he is not yet gone. Once, he recovers enough to look through his photograph albums, his be¬ loved mementos of his travels, the record of his life. Again, he sees Sallie, his long-dead grandmother, standing with his brother Ricky, and his father, Fred¬ erick, at the foot of his bed. If they were there, imagine how confused and pleased he must have been, to see us all there around him, the living and the dead, himself the fragile bridge between life and death for the long week it took him to cross over. On the last day, after about five o’clock, Anne and Gabriel begin increasing the doses of morphine. Simeon has not been conscious for a full day and seems differ¬ ent from before. The doctor has assured us he is moving through his last hours. The day before, Dan’s wife gave birth to their son, Simeon. Simmie had been told and seemed to understand. He had been shown photographs of the baby. When night was falling and we’d been counting breaths and giving morphine for hours, Dan tells us that several weeks before a voice had come to him in a dream and said: It will be 3-18. His son, Simeon, had been born the night before, on March 10 at an hour that bore no rela¬ tion to the numbers 3-18, so instead of going home, Dan is sitting out the night with the rest of us, at least until 3:30 a.m., he says. We take turns sitting on the bed, counting breaths, two a minute. Still a fairly strong pulse. We wait. At 11 p.m., a night nurse arrives and says the end is near. Khary sits beside him for hours, holding his hand, stroking his forehead. I am afraid he will suffer later, but he is determined to remain close, in part, I think, because 6o Douglas is keeping so fierce a distance. Nor can I sit for hours watching every moment of the dying. But wher¬ ever we are in the apartment, we can hear the increasingly loud and labored breathing, not a “death rattle,” more like boulders rolling across the land, or a large drum. Douglas begins to fall asleep, which causes Khary to be¬ come upset and I keep waking him, but then seeing the stress in his eyes, the tightness of his jaw, that he cannot bear this deathwatch, I suggest that he lie down in the other room, where his sister has already retreated, and he falls asleep immediately. Tiffani has gone outside to stand in the night air, and I tell Khary I think she needs him. He goes out and stands on the stoop with her. I wrap them both in one large, red blanket so they look like a homeless couple, two utterly beautiful, lost beings in the night. At about midnight, several of us are standing outside, and Dan tells us again about his dream. Khary and I go to a corner store to buy ice cream pops, which every¬ one grabs and devours. I so wish Adam were with us, for his strength and humor, and because we are all so pro¬ foundly cemented by this experience I fear we will never be able to fully describe. For hours, those two breaths a minute come. We eat and drink and laugh at ourselves for all the eating. Then the laughter disappears in an instant, like a note with no echo, the sound completely gone. Some drift back to the bed, others to chairs. I go outside for long periods to escape the terrible sound of the breaths. I remember Charlotte Bronte’s descriptions of her beloved sister Emily’s death, the interminable hours of thinking the end is coming any minute, the medications and herbs used to “ease the way,” the sound of the painful struggle for breath as the lungs fill with liquid. She sat in the kitchen waiting for her third sister to die, and she felt her lifelong loneliness surround 6i her, familiar in its dampness, its pungent smell. The lone¬ liness was both destiny and curse, partner to “a sense of unworthiness,” she called it, “never to be erased.” * Shad¬ ows cross and recross in the dark, sounds coming from far away, anger coming from far away, love even farther back, a nearly imperceptible shape, as narrow as a line. My teeth begin to ache as I write, a familiar sign of powerlessness in myself. I felt powerless in those last moments, not only in the human battle with death but in my own capacity to love as generously as I would have wished. Just as I was expressing my pent-up anger to Irene, the nurse rushed over and said Simmie had died. There was a sudden silence. No breathing. He seemed peaceful, his face expressionless, blank, or pure, his body only flesh, the spirit gone. It was exactly 3:18 a.m. Dan’s dream undid my belief in linear time, my faith in the orderly chronology of human stories. I smelled the acrid loneliness, then it was washed away leaving a blinding emptiness behind. I felt shocked, exactly as if we hadn’t been waiting for seven, almost eight days, ashamed of my angry thoughts at the very moment of his death. As if I had been given the chance to do it over, better this time, as an adult, and had failed again. I wanted to cry in Lois’s arms, to hold Douglas while he cried, to fill the middle of just one silent night with my own cries. But I had no tears. Coldness kept my neck stiff, my angry fists at my sides. I woke Douglas and called Tiffani and Khary inside where we gathered around the bed one last time. Every¬ one embraced everyone else, like at New Year’s Eve. Lois knelt by the body and sobbed, “I cannot live without you,” as if there were one last moment when he might still hear. Tiffani lifted her up and finally, after everyone * Helene Moglen, Charlotte Bronte: The Self Conceived (New York: Norton, 1976). 62 else had stepped away, she and Douglas, her last remain¬ ing son, embraced. We covered Simeon, closed his eyes. Lois and Sher¬ rill retreated to the one bedroom behind a closed door. Somewhat madly, Dan, Irene, Douglas, and I cleaned the kitchen. Anne drove Tiffani and Khary back to Berke¬ ley while we waited for the undertaker. When he came, Douglas and I joined Lois and Sherrill in the bedroom so we wouldn’t have to witness the final leaving. I sat on the floor, laid my head down on the bed and in a second fell asleep. In a few minutes I was awake again, listening to the sounds of the body being taken away. When we emerged, all was changed, the bed folded back into the couch, the room empty of people and chairs. Lois insisted all she wanted was to be left alone to go to sleep. Douglas and I drove back to Berkeley in the dawn. A month after Simeon’s death, we gather in San Fran¬ cisco again for a memorial. I rise to speak to the large crowd, but I keep my eyes on Khary, Adam, and Tif¬ fani. I speak to them about the family, remembering their grandfather Frederick, Tiffani’s father, Ricky, now Simeon joining the dead. The tears I could not shed at his bedside are plentiful now. I am speaking through sobs but I push on, naming the ways I have belonged to them all, seeing the ways I never will. Back East, when I record the story of those days, I am sitting on the steps of a house near the Long Island Sound. I raise my face to the sun, which is strong de¬ spite a heavy snowfall the previous night. As I complete the task of record keeping, listening to the sound of the gentle waves, I think of Dan’s prophetic dream and I feel my father near me, for a moment perhaps even my mother. A sense of belonging somewhere, to someone, grazes me, the edge of memory calling the name of my need. But now it is gone, replaced again by loneliness; the memory of my mother’s fragile wrists resting on smooth, white sheets; the bones of Simmies skull, his skeletal thighs; the curve of my breast beneath the radiation ma¬ chine; the very loneliness that leads me back to the stories I am trying to knit together with borders of words. The first stage of the six weeks of radiation is some¬ thing called a Simulation, a process several hours long that readies the body for treatment. I lie on a table, one arm raised above me, while a mold is made around my head and shoulders. 1 am filmed, measured with wires and rods. Five small marks are tattooed in a circle around my right breast to frame the space within which the radi¬ ation will occur. For nearly an hour I lie on a table with one breast exposed, six or seven doctors and technicians moving around me, filming, measuring. Large machines loom over me, seem as if they might drop any minute, crushing me. My back aches terribly after a half hour, but I am obedient and do not move. Sorrow flows over the future in an infinite wash. Delineation disappears. Time seems horribly amorphous, without normal con¬ tours, and to contain the panic this causes I whisper, August, September, six weeks, five days a week plus two, thirty-two days. It is August 6, Hiroshima Day. The papers are filled with old photographs of people burning alive, dying in large numbers from radiation. Daily, there is news of a Republican congress that strips the poor of all sup¬ ports, blaming the weakest among us for their inability to survive heroically against the greatest odds. The Una- bomber prints his mad declaration in major newspapers, and threaded through his homicidal, power-hungry, rac- 6 4 ist and sexist madness is a quite sane fear of technology, a critique of the very idea of progress. If technology is curing my cancer, I have also been warned that it could create new cancers, cause damage to other organs as the breast is cured. I feel insane, like the Unabomber terri¬ fied of the world. I am filled with rage at politicians who are trying to destroy ordinary people and increase ex¬ traordinary corporate profits. I weep at the sight of old, charred bodies in Japan. Once I constructed a dry, inter¬ nal distance to protect me from feelings always too raw, desires too naked. Now, with the swiftness of lightning in a storm, that distance is crossed by any suffering I see. Inside, I am moist, storm-threatened. I am not heroic. I cry each day before my treatment, and during the treat¬ ment I have to work hard not to sob out loud. Summer heat swells my feet and fingers, which need repeated immersion in ice cold water when I am home. At night I drape cool rags across my forehead and chest. Even in air-conditioned rooms, I cannot stop sweating. During the day, I clean house, oil wooden floors, plant and sweep the terrace, reorder shelves, and wash the re¬ frigerator, controlling what I can. Some days, lying on the radiation table, I try to think of the Wellfleet Bay I love, but I begin to cry from the contrast, and these tears lead immediately to tears of longing for Adam. I think about his great bravery, his more difficult — because it is daily and lifelong—disease of diabetes. With the tears, my body begins to move, so I decide to block out all feeling, concentrate on the radio music being piped in, the white walls around me, the slightly stained ceiling above. On many days, I wait forty-five minutes to be called in, growing more and more agitated as the minutes pass. Other patients recount their stories to each other, their 65 voices threatening to permeate the walls I have erected around me as I stare into my journal or book. One day, a woman begins to talk to me. “I am out of my mind with fear” she says, and shows me the burn on her breast after three weeks, a large area of nearly blue black on dark brown skin. I have been warned of burns but have not imagined them so definitively. A very ill-looking South American man is accompanied by several members of his family. His throat is bandaged, his face terribly swollen, his eyes swollen too, and bloodshot, from weeping or disease. Every so often, he has to vomit, and a woman places a steel tray under his chin. I close my book and rush into the hallway, pace, turn my back, breathe. In the interior waiting room I change out of my shirt and into a cotton gown. Raisa, a new technician, a woman of about twenty, is clearly upset by my crying, and I try to stop for her, but although I can contain the sound, water keeps flowing out of my eyes, down my cheeks, over my chin, onto my throat. I am amazed that I have so many tears, remembering myself at Simeon’s deathbed, eyes as dry as ice. Jamar, a warm, competent young man who is the head technician, asks me what is wrong. I try to explain that not knowing what is about to happen to me is terrify¬ ing, that I cannot bear the other patients talking in the waiting room. I tell him that I listen to their tales of ill¬ ness with my eyes cast down, writing ceaselessly so no one will talk directly to me, give me the weight of their stories. I tell him there is an old man who walks around in a diaper, no robe covering him, as if he has given up the struggle for dignity. There is a woman prisoner with long, gray matted hair and a pockmarked face, whose legs are in irons and who comes in each morning accompanied by two women guards. When I don’t hear the stories, or 66 overhear them, I imagine them, or make them up. I take them in and they become me, and I need all my strength to feel in control of my own story, to get through this ordeal. I tell Jamar all this, finally breaking into sobs, and I apologize, tell him he is probably too young to under¬ stand. “I am not that young,” he says, offended, “I am thirty years old, and I do understand.” From that mo¬ ment on, he gives me detailed coming attractions each day when I leave of what to expect the next day. As soon as he sees me in the waiting room, he ushers me into a quieter hallway where I can pace or sit alone until it is my turn. I feel very selfish compared to those who can talk and listen for hours. But in the following weeks, two or three other people will confess to me the hardest part for them, too, is waiting with the other patients, listening to the terrible stories. So we are a group of a sort, not really selfish, only permeable. One day as I wait, I see Dr. C., the radiation oncologist. I ask her if there is any danger to overlapping the radi¬ ation with chemotherapy, as they are doing in my case. “When both are given together there is almost always a worse burning of the breast accompanied by shoot¬ ing pains, but none of it is anything to worry about,” she informs me crisply. “How much pain?” I ask, trying to picture it, give it dimension and so contain my fear. “Just some discomfort,” she responds impatiently. I am being a bad patient again by refusing to see this is all something that can easily be managed with a stiff upper lip. “Well then,” I ask, “why don’t they halt the chemo¬ therapy while I am in radiation?” And right there, in the waiting room, she begins to shout at me: “We are dealing with your longevity here. Do you want to compromise your longevity?!” I meet a young woman with a black cross on her throat marking the place where they direct the ray. As I walk toward her, she tells me she has just finished her treat¬ ments, and she falls into my arms. We remain that way, rocking each other, strangers who will never see each other again.The next day, when I go into the bathroom to get dressed, I see the same black cross on my chest. I try to get it off with water, but it seems indelible, and I am filled with anxiety about what it means. I ask the atten¬ dant, and he tells me with a stunning, callous smile that it is nothing, only a mark for their convenience. No rea¬ son, he repeats. Comes off with an alcohol swab. When I describe the anxiety of finding it and the symbolic mean¬ ing of a black cross, he apologizes for their insensitivity and promises that from now on he will give people the swabs in advance. Each day, I lie back on the table, find my place within the blue head and shoulder mold, raise my arm to its awkward position, lift my legs over the pillow they pro¬ vide for some comfort and begin to cry. I lie perfectly still under the machine. In the dark, I close my eyes so I will not see the reflection of my breast. Then, the light on again, the sustained loud screeching noise, which at first intensified my fear by giving sound to the violence being done to my body, is familiar by now, even slightly com¬ forting, something to count against. Between forty-five and fifty-seven seconds, then Jamar and Raisa return, re¬ move the slides, push the machine to the side, give me a hand to sit up and I am through. One day after the treatment, I meet my friend Sally for lunch. In a small, book-lined restaurant where we munch on salads and sip diet Cokes, I begin to cry again, for the first time with someone other than the technicians and Douglas. Sally has remained completely focused on me through months of illness, consistently attentive, will- 68 ing to walk me to the radiation unit in the depths of the basement of the hospital, wait for me there, or meet me afterward, interrupting her own work for an elegant or ordinary lunch. She looks into my eyes steadily. There is no sense of discomfort in her gaze. She will listen as long as I can talk. She is giving me just the thing I need most and cannot ask for. In the attentive warmth of her friendship, I feel its opposite, the hot rage and grief I must have felt as a child slinking around doorways, try¬ ing to be quiet while my mother died. My father, aunts, and grandmother must have been too stunned or fright¬ ened or selfish to listen to children’s cries, which were unassuageable anyway, and might as well be silenced as encouraged. Pieces slide together slowly, right beneath the surface. I try to hold Lois but her grief is too immense for comfort. Her anger ignites mine. It is stiffening. She cannot hold me back. A young woman across from me in the waiting room reads her Bible and quietly prays out loud. I write a cal¬ endar of dates in my journal: Next week I will see a close friend who is visiting from Israel. The week after that, Adam is coming home. By then, it will be nearly Sep¬ tember and I will have just two more weeks to go. I feel stronger when I write these notes, and the strength lasts through the treatment and on the walk back across town. But on the subway going home, I sit next to a woman who is holding her child. He is about four or five years old. Dangerously, I notice the fragility of his arms wrapped around her neck, their graceful curving lines. Then I re¬ member the delicacy of Adam’s arms, of Khary’s, when they were that age, their arms encircling my shoulders, my neck. I see the half-moon curve of a child’s thigh in a Kathe Kollwitz drawing. And I see the silhouette of my breast on the screen. The beautiful shape, the delicate roundness of the curve, the dark oval crossed by com¬ puterized red lines, identifying the target for the rays. As the days and weeks go on and my skin begins to burn and scale, my emotions grow large, devouring dis¬ tance and control. Anxiety after only a few moments of waiting. A level of exhaustion I could not have imag¬ ined. Panic threatens each morning as I get ready to go downtown to the hospital. I begin to see I will have to ask for more help, for Douglas or Khary or Sally to ac¬ company me more often. One weekend, I return to the grassy beach in Long Island and take a long walk through the shallow sound. Softly, water moves against my body, caressing my breast and my right arm which is still sore from the surgical re¬ moval of lymph nodes. I walk out where it is deeper. I lie down. Fluid and at peace, I let my head sink beneath the water and taste the salt on my lips and tongue. Then at night I hurt my arm slightly when lifting a window, and the small pain opens the flood gates. I cry uncontrol¬ lably. I cannot be quieted. I long for my father to hold me, standing by my bed, which I stand on, so that our shoulders are the same height, to hear him say, Go on, cry, Ketseleh, cry it out. I long to feel his mouth against my hair as his cries rise to match mine until we are both calling her, holding onto each other, patting each others’ backs while he smooths my hair, the flood of our tears intermingling on my cheeks, and I taste the salty water in my mouth. Only in the last two weeks do I begin to relax into a slightly thicker skin, partly because the end is in sight, partly because I have become friends with Raisa and Jamar, which eases the surface loneliness. The summer 70 itself, which loomed so monstrously in May and June, a huge giant of time lying still and unmovable before me, is nearing its end. After the summer, only two weeks of radiation and two more chemotherapy treatments will be left to go. In the unit, people reach their last day and emerge with paper diplomas. An emaciated blond woman who must be over sixty looks like a blushing girl when she announces her “graduation,” and her face lights up the room. I tell Jamar that while I don’t want to hurt anyone’s feelings, I do not want a photocopied diploma when I leave, that to me it feels like a trivialization of all I have been through. He reacts with his usual kindness, now made more precious by his growing knowledge of me. “I didn’t think you would,” he says, smiling. I realize, with some astonishment, that when I am finished I will miss these intelligent young medical workers whose capacity for sympathy and fearlessness in the face of suffering is so much greater than the doctors whom they serve. I almost begin to feel at home. Instead of leaving my bra and shirt in a locker, I take them into the treatment room with me now and quickly put them on when I climb off the table, so I can walk swiftly back through the rooms and onto the street. In the last week, a new dark-haired young woman ap¬ pears. She looks no older than twenty-one or two, and like me she is quiet, always reading her book. One morn¬ ing she waits and waits, but she is not called. The re¬ ceptionist, in her usual oblivious, haughty mood, makes no mention of it. The South American man is sick again, and begins to vomit. The young woman and I rush to the inner waiting room to escape. I ask if she has been wait¬ ing long, and she responds, yes, for over an hour. Soon, Jl a nurse with a strong New York accent, who has told me she writes “stawrries and po-ems,” a kind woman who welcomes me into back rooms to wait when she sees my “nerves,” comes into the room. But she motions to me that it is my turn. I tell her the young woman has been waiting much longer than I have. She rushes off to in¬ vestigate, finds they have made a mistake, did not know she was there, and thanking me, they take her first. I will have to wait another twenty minutes, but I feel strong, maternal, adequate to the task at hand. When I was a child the word mother was precious to me. I hung onto it like the tom edge of a shredded blan¬ ket a child carries around as talisman, omen, secret good luck charm. I felt paralyzed with envy when I heard other children saying Mommy, or Mom (with casual en¬ titlement) or Mother. I’d stand still, watching, trying to match the sound of the lost word with emotions the child speaking must have been feeling. I’d have to stand very still to focus my energy, to will the tears to remain inside, not to move into my throat and become a scream. For years when I spoke of my mother, I would never call her Mother, certainly not Mom, or Mommy, but Tul- lah, her name. I tried to face the reality that if mother sig¬ nals the deepest possible intimacy or at least familiarity, I had no mother at all, and when I married Douglas I knew immediately that I would call his mother by her name. We would be friends, I said, long practiced in resisting illusions about substitutes, maintaining a cold, uncom¬ promising eye on the truth. Only after I had breast cancer did I begin, for the first time since childhood, to unearth the impossible desire for someone, anyone, to take her place. During the long months of treatment, I wanted no one more than a mother. I would not say my mother, be- 72 cause I still had only the barest recollection of her and did not focus my yearning on her particular face. Like many sons and daughters who are themselves middle- aged, even those with living mothers, when I yearned for a mother it was the mother of my dreams. During my first few sessions with Aaron, after I had surgery but had still not fully comprehended that I’d actually had cancer, I told him of my mother and the old fear that she and I were somehow the same person, that in order to overcome the deadly identification I had to banish her. He said, “Well, you are not her, but you are her daughter.” The simplicity of his statement stunned me. Both things could be true at once then, an ordinary reality I hadn’t considered for many years. It would take eight more months before I could remember loving her, the searing pain when I lost her forever, before I could reclaim her from her sisters, her mother, my father, all the voices who insisted she was perfectly magnificent and therefore couldn’t be mine. Raisa asks me if I am feeling better, as I am crying less. I say becoming attached to her and Jamar has helped. She responds, “Yes, that’s the trouble with this job. You get attached to people and then they disappear; but I understand you, Ms. Lazarre,” she tells me. “My boy¬ friend is just like you. Really sensitive. A lot on his mind.” This is one of the few times I am comfortable being called Ms. Lazarre when I am using the other person’s first name. With building workers, my students, my chil¬ dren’s friends, and certainly with doctors when I am on the other side, I hate the hierarchy of respect this in¬ equality of naming often represents. But here, it is liter¬ ally a saving grace. Like a dancer’s movement, I feel my back straighten, my face raised as if to receive a blessing 73 from the sky. I put my arm around Raisa for a moment to thank her, place my open palm against her head, feeling the heavy weight of her thick, soft, dark brown curls. By the last week, a deep purple line extends under my breast, across the incision under my arm. Otherwise, everything is dark red, looking burnt, which is exactly what it is. I am unable to relax or sleep when I am home, afraid of relinquishing my vigilance. The image of my mother comes to me frequently now. Sometimes her face, staring up at the ceiling as she lies in bed knowing she is going to die. Sometimes, the face in her photograph, which has remained for years buried in a drawer, al¬ though all our other ancestors are framed and cover one narrow wall, a tribute to memory. Sometimes I imagine her bones, what must be left of her body after forty- five years. They lie in the shape of a woman, but they have fallen apart, no longer attached to each other by the connection of flesh. They remind me of my own skele¬ ton as I saw it depicted on a large computer screen the day I had a bone scan. I keep a vigil. Otherwise every¬ thing, the bones, the unattached memories, myself, will fly apart. Phobias about words increase — chemotherapy, radi¬ ation, cancer, the doctors’ names — I can neither say nor write any of them. I cringe when other people say the words, especially chemo, that common nickname for something so awesome and dangerous. Exhaustion mounts. Douglas and Khary decide I should not go by myself again, and they make up a schedule, taking turns accompanying me downtown on the days that Sally can¬ not come. When Adam is home, he comes with me. Their devotion strengthens me; my pride in my tall, powerful sons narrows the short period in the hospital with wide J4 borders. The walk itself, even the subway ride, is an out¬ ing that fills me with joy. On the last day of radiation, I choose to go by myself. On the way to the hospital is the huge open Farmer’s Mar¬ ket in Union Square. Across several city blocks are rows and rows of colorful plants, country-bred flowers, every kind of fruit, vegetable, home-baked bread. I buy corn, plums, a lush plant called Wandering Jew, a large bunch of red, yellow, and pink zinnias for Jamar and Raisa, two dozen black-eyed Susans I recall my mother naming for me as we drove down a country road in her beige Dodge, her violet dress matched by a purple flower in her hair. Now, the people I came in with six weeks before are mostly gone, and a new crop waits in the outer room. This small world filled with scary images and a sense of being a part of the doomed will go on, far beyond my treat¬ ments, and Jamar and Raisa will offer their kindness to others, some of whom, perhaps, will be as emotional as I have been. Meanwhile, my breast will heal, the darkness will fade, and even the scar will grow shallow, becoming more of a line than a gouge out of the flesh. Before I leave for the last time, I call Jamar and Raisa into the room. I put my hands on their shoulders and tell them they are immensely gifted health care workers, that I could not have gotten through without their sympathy and support. “Coming from you that is really a compli¬ ment,” Jamar says, and I feel that somehow, thanks to their unfailing respect, I have preserved some dignity. I embrace them both and walk out onto the street. My grief is enormous, shapeless. It leans on my chest as I try to breathe. It surrounds me with breathless emptiness. I will not be able to give it name or form until all the treat¬ ments are over, and I still have two chemotherapies to go. But I know I have come through something that has changed me forever. I walk a city mile back to the sub¬ way, weighted down to earth by the flowers and fruit in my arms. 75 There are many days during the months of radiation and chemotherapy when Lois comes to my apartment and remains all day. She understands the comfort of having someone in the house when you are not well and feeling weak, even if you have no specific need. She usually sits in the living room, watching television, doing her bills, reading, or napping. I lie in bed thinking of her child¬ hood, growing up in poverty, shunted around from rela¬ tive to relative, her mother dead when she was five, her father dead before she was born. I am trying to imagine her grief narrative, the words she might use if she had the confidence, the endurance, or the opportunity to write them down. Above all, coldness undermines me, makes me feel cul¬ pable, faulted, ashamed, long before I feel any anger. Writing this, I am suddenly feverish, my skin goes hot, my face burns. I feel the old grief of losing everything, so there must be some memory of union, or why would I feel loss and not emptiness? But I have no actual memory, only the image of my mother I saw in an old family film made by an uncle when I was a child. She is holding me on her lap, my long legs touching the ground. I am pouting and she is gently mocking me, poking my lips into a smile as she smiles at me. For a moment she is an ordinary mother, I am an ordinary child. And that is all. All the rest is fantasy or cruelty or an incessant, active nightmare that illuminates everything with its shining outlines of the deepest, thickest black. I am sitting in Aaron’s room. Every Friday, it seems, 7 lesson in how to use WordPerfect, my word-processing program. Patterns I thought I’d overcome years before close in on me again, and I follow old narrow tracks with hideous ease. I begin to feel secretly crazy, convinced “I cannot read the world right,” as I have named this feeling since I was a child and asked all the adults around me, “Is my mother going to die?” Then heard them say, “No, of course not, how could you say such a terrible thing?” The despair is so unrelenting, the sense of unworthiness never to be erased so fully returned, a feeling of failure in the world seemingly so final, that for the second time in my life I make the decision to give up writing entirely. Thus, I lose my last defense. I try to emulate Douglas’s relentless optimism, his abil¬ ity to leap out of every disappointment into renewed, energetic hope, but I am afraid we are both in danger of losing heart. We watch hours and hours of television, trying to relax and escape, becoming resident experts on every detail of the O.J. Simpson case. We talk of O.J. Simpson in the dark before we fall asleep, go over the hours of commentary on talk shows every night, check¬ ing off all the points that argue for his innocence. Long after the not guilty verdict, when I am still in treatment for breast cancer and trying to unravel all the stories I am writing here, I will dream I am walking through a world of dark, underground caves. In one cave I see Simpson sitting on a rock, bereft and alone. He may have been found not guilty of murder, but he has been found guilty of being a bad person, so he must remain underground and in prison for the rest of his life. He looks into my eyes, and I see we are the same. Ice mountains solidify, collect garbage until the gar¬ bage becomes the mountain itself. The steel door, even with its ugly rust and corroded paint, is the only escape. I begin to take a sleeping pill each night, craving uncon¬ sciousness. For the first time in my life I have to remind myself to write in my journal. With the relief of the deep sleep provided by the pill, even dreams disappear. The moment I leave my classroom, or turn off the television, depression sweeps over me. I am invisible. I am silent. This downward turning feels life threatening, as if I am actually descending into a world of underground caves. It grows darker and colder. I am awakened in the night by intense sweats accompanied by the certainty that I have cancer. I am brokenhearted and fear a heart attack. My grief consolidates. I am enclosed. During this period, the early spring of his senior year at Brown University, Khary and his friends at school, all of whom are Black, although from a variety of ethnic back¬ grounds, are increasingly harassed by the police. They are stopped on the street without reason and asked for identification, even threatened. Their parties are broken up violently, false accusations made about selling drugs and liquor. One of Khary’s close friends is arrested and taken to jail, where he will remain frightened and angry all night. Khary and another friend jump into a car to follow him to the station house, determined to be wit¬ nesses and thus lessen the chances of police brutality. But as soon as they start the engine, they are surrounded by several police cars screeching to cut them off, “like in some cop movie,” he tells me. “I have the right to see what happens to my friend,” Khary says to the encircling police, and one cop, his hand on his gun, shouts, “You have whatever rights I say you have.” Every day, Douglas and I call deans, assistant deans for “minority affairs,” the head of the college police who himself was once a member of the Providence force. He speaks with careful respect of “African American young 9i men,” assures me he knows it is natural for college stu¬ dents to have loud parties and question authority, ad¬ mits that when Black young men are having parties and questioning authority, police immediately tend to sus¬ pect they are part of the drug world. He acknowledges the accuracy of the reputation of the Providence police for racism and brutality, “worse than in L. A“But I told them,” he says, “that Khary and his friends are good guys, and not to even think about harming any of them.” His need to say this escalates my fear of what might happen on any given night when some young African American college student, possibly my son, decides to question the authority of a cop. Then he tells me he knows just how I feel because his own son, a member of the Providence police force, has been targeted by a local gang for death. Silently, I wonder whether the young man has been bru¬ tal or unjust to provoke this targeting. Nevertheless, I sympathize with the father, terrified for his son’s life. As parents we feel the same, although our sons are on oppo¬ site sides of what Khary has called a war. But this is the man who was Khary’s primary adversary on a univer¬ sity committee formed to address the question of college police being armed. He wanted his men to carry guns. Khary and his friends wondered how many Black stu¬ dents would be shot “by mistake.” Several hundred miles down the East Coast, I am wary and desperate. I beg him to keep an eye out for my child, to negotiate with the police. Nothing is sensible or controllable. I am unable to protect my son, and white society at all levels denies the racism threaded into every social structure, every indi¬ vidual mind. At some point, with college intervention, the crisis lessens, but it does not disappear. The police have labeled the house of Khary and his friends a “trouble spot.” At the least, they are robbed of the pleasures of 92 late parties during the end of senior year. At worst, they may be in real danger. I count the days until graduation, realizing the stories I’ve collected in my book will never be done. I begin to fear, as Derrick Bell and others have said, that American racism is permanent, incurable, an evil we shall never overcome. I enter into a period in which my journal is obsessed with fear, self-doubt, and self-deprecation in relation to everyone and everything. More than a year later, these pages are still painful to read. The desire to contribute to public conversations on issues about which I care deeply and have spent my life exploring — motherhood, race, the uses of autobiography to reflect on history — feels doomed. There are two equally important aspects of a writing life. One is the bedrock temperamental need to continu¬ ally, as Adrienne Rich put it in one poem, “turn one’s life into words.” The other, which grows as one ages, is the need for impact, for recognition, and thus contribution. Can a woman of fifty who has been writing for twenty- five years have the first without the second? And if not, what possible replacement can there be? These questions plague me and seem unanswerable during the winter and early spring following the shock of this rejection. When I walk from the subway to work, or from home to the store, I have the desire to lie down on the pavement and just go to sleep. She is out of her mind, I hear someone say as he passes my body in the street. I stop for a moment, staring down, strongly attracted by the possibility of not taking another step. Toward the end of April, after a year of searching, Doug¬ las finally gets an interesting and apparently permanent job. Two weeks later, I go for a sonogram to test a hard- 93 ness in my right breast, which I am certain is just the cystic breast tissue I have experienced in the past. But as soon as the radiologist touches me, I see recognition in her eyes, and the needle biopsy she gives me then and there confirms I have breast cancer; a discrete lump, she thinks, hopefully easily removed, she reassures me, but nevertheless a lump. Cancer. A disease that mystifies doctors and researchers with its power to return. In that sense, incurable, at least in any definitive terms. And in that moment, standing on the street with Doug¬ las, both of us in a kind of shock, my depression lifts. As if by a harsh, swift wind, despair is blown away. I notice it immediately — the heaviness gone. I am terrified, but also energized by a kind of gathering determination I can only call hope. Reaching back into a past I thought was all but lost to me, I begin to write obsessively. I write about my feelings, record information, take notes on the medical knowledge I have to master in a few days in order to make intelligent decisions. I write in hospital waiting areas, on examination tables waiting for doctors to come into the room, on subways, at home whenever I am not occu¬ pied with something else. Long-obscured feelings are suddenly stark and clear. Now I can name the deep and dangerous shift I felt: a loss of faith, or belief in the spirit of my life, as if it were over, nothing to live for; what one writer I read long ago called “a leftover life to live.” At first, I am writing only to maintain a sense of con¬ trol. But slowly, after the surgery is over and the period of treatments begins, words assume their old magic again. I am intrigued by their heft and weight, entranced by their music, their capacity to represent so closely what I feel inside and notice in the world. I dream the old dream of finding an unused, dusty but spacious room behind a 94 door in my apartment, a room I had forgotten was there. But I feel a stranger in my body with all its aches and pains, its weaknesses and inabilities, its threats. I lean on everyone, can’t lift a box of groceries, get through a day without sleeping, or a night without crying. It feels in¬ sufficient to say, simply, that I am afraid I am my mother and therefore dying despite positive medical prognoses; or that many people feel illness, especially cancer, as a mysterious, personal failure, resistant to ordinary com¬ prehension and controls. I can list all my griefs, but I can’t knit them together. I need some more specific center. I need to see, or create, a structure in order to understand. When my younger sister Emily comes from Califor¬ nia to stay for several weeks, and accompanies me to the first, most frightening, chemotherapy, I look at the woman and remember the little girl. I held her in my arms as we clung to each other in our beds, nights increasing into years as our mother lay dying in her room through the kitchen and down the hall. I remember feeling en¬ raged, wanting it to be over, wanting them to turn the lights on in that room. But those thoughts quickly sank into darkness, and habitual insomnia began. After our mother died, I would crawl into Emily’s bed, pretending I was there to protect her, letting her fall asleep on my shoulder as we listened to our father pacing and weeping outside our door. I remember her long blond hair, which I envied and adored, the intense blue eyes that marked her, and not me, as our father’s child, the small, thin body I smacked in anger, leaving long red marks on her fair skin. I remember reaching out for her hand as our family cruelly divided us, she, her father’s child, I, my mother’s, each of us deprived of half a sense of belonging, which in different ways became not belonging anywhere at all. Over and over, I remember staring up at them as they narrated their divisive mythologies and reaching down for my sister’s hand. Emily is a painter and sculptor, and during one long period she painted double portraits. From each canvas, two faces looked out at me, the two earliest, most familiar faces of my life. Both cast as women, one had my father’s features, and one my mother’s. But the woman with her features in certain paintings could also look like me, and in another light I could see both my sister and myself in my father’s face. When she is sitting in the living room after the chemotherapy is over and I am lying on the couch, nauseated but relieved, I feel an enveloping com¬ fort. When she touches my arm, I feel I am safe at home. It is always difficult to call a new therapist, to ask a complete stranger to listen to the most detailed narratives of one’s most personal life. But with Emily’s encourage¬ ment, I call someone recommended by a friend. I was surprised that I was calling a man, and told myself the defining reason was that his office was within walking distance of my apartment. Now I realize there were old and reliable securities embedded in his maleness, a belief in survival itself. When I first meet Aaron, I am struck by his kindness. I have no hopes or anticipation of the pro¬ found changes I am about to undergo. During most of the summer, I swing between strength and weakness, confidence and fear. Then, one night, I awaken from a nightmare in a rage so intense I am screaming. Incoherent sounds, roars, or cries are coming from my throat and I cannot stop them until Douglas shakes me. I know I have dreamed about my former editor, the woman who betrayed my book. Like a child changing a monster into some ordinary, familiar shape, I have to turn on the light to wipe out the image of her face in the dark. S>